ArticlePloS one2026
Development and validation of the Manipal Interstitial Lung Disease Education Booklet (MILD EduB) for individuals with interstitial lung disease.
Article in PloS one, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Authors and funding
12 authors.
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Abstract
In India, Interstitial Lung Disease (ILD) is a significant healthcare burden. Poor outcomes are caused by delayed diagnosis and insufficient patient education (PE). In this context, the Manipal Interstitial Lung Disease Educational Booklet (MILD EduB), a culturally relevant resource for individuals with ILD in India, was developed and validated. The booklet was developed in four stages: (1) a scoping review to identify important educational themes; (2) development of a draft booklet shared with experts for review and feedback; (3) validation of the booklet by healthcare professionals using the content validity index (CVI); and (4) face validation by individuals with ILD. The initial scale-level CVI (S-CVI/Ave) was 0.79, which improved to 1.0 following modifications, indicating good expert consensus via the healthcare professionals. Face validation by individuals with ILD (n = 10) using a 4-point Likert scale demonstrated 100% agreement for readability, relevance, and design. With a Flesch Reading Ease Scale score of 80.9, the finalised booklet is considered easy to read and accessible to individuals with ILD with a wide range of reading levels. MILD EduB fills an important gap in ILD-specific educational resources, particularly in low-resource settings. Its evidence-based content and patient-centered design aim to improve adherence and self-management.
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