Evidence map›Paper›PMID 42439098›Full record

ReviewJournal of neuromuscular diseases2026

Navigating sexual health, fertility, and adult wellness in individuals with Duchenne muscular dystrophy: Current standards of care and future directions.

Nat Nasomyont, Amanda Appel, Susan Apkon, Janet Hoskin, Prasanth N Surampudi, Natalie Truba, Gabriela Vargas, Aravind Veerapandiyan, Claire L Wood, Patrick Moeschen and 20 more

Abstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in Journal of neuromuscular diseases, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

30 authors.

Nat NasomyontDivision of Diabetes and Endocrinology, Cincinnati Children's Hospital Medical Center, and Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
Amanda AppelDepartment of Physical Medicine and Rehabilitation, Children's Hospital Colorado and Anschutz University of Colorado School of Medicine, Aurora, CO, USA.
Susan ApkonDepartment of Physical Medicine and Rehabilitation, Children's Hospital Colorado and Anschutz University of Colorado School of Medicine, Aurora, CO, USA.
Janet HoskinDepartment of Education, School of Childhood and Social Care, University of East London, London, UK.
Prasanth N SurampudiDepartment of Internal Medicine, Division of Endocrinology, Diabetes and Metabolism, Davis Medical Center, University of California, Sacramento, CA, USA.
Natalie TrubaDepartment of Psychology and Neurology, Nationwide Children's Hospital, Columbus, OH, USA.
Gabriela VargasDivision of Adolescent/Young Adult Medicine, Boston Children's Hospital, and Department of pediatrics, Harvard Medical School, Boston, MA, USA.
Aravind VeerapandiyanDivision of Neurology, Department of Pediatrics, Arkansas Children's Hospital, University of Arkansas for Medical Sciences, Little Rock, AR, USA.
Claire L WoodDepartment of Paediatric Endocrinology, Great North Children's Hospital; and Translational and Clinical Research Institute, Faculty of Medical Sciences, Newcastle University, Newcastle Upon Tyne, UK.
Patrick MoeschenParent Project Muscular Dystrophy (PPMD), Washington, DC, USA.
Colin WerthParent Project Muscular Dystrophy (PPMD), Washington, DC, USA.
Alexandra AhmetDivision of Endocrinology and Metabolism, Department of Pediatrics, Children's Hospital of Eastern Ontario, University of Ottawa, ON, Canada.
Shipra BansalDivision of Endocrinology, Department of Pediatrics, Arkansas Children's Hospital, University of Arkansas for Medical Sciences, Little Rock, AR, USA.
Lindsey BratlandDepartment of Pediatric Psychology, Nationwide Children's Hospital, Ohio State University, Columbus, OH, USA.
Janet L CraneDivision of Pediatric Endocrinology, Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Melissa FiscalettiDepartment of Pediatrics, Sainte Justine University Hospital, Université de Montréal, Montreal, QC, Canada.ORCID 0000-0003-2092-0691
Rana HallounThe Ottawa Pediatric Bone Health Research Group, Children's Hospital of Eastern Ontario Research Institute, University of Ottawa, Ottawa, ON, Canada.
Kathi KinnettParent Project Muscular Dystrophy (PPMD), Washington, DC, USA.
Carol LamDivision of Endocrinology, Department of Pediatrics, University of Toronto, The Hospital for Sick Children, Toronto, ON, Canada.
Laura McAdamDepartment of Pediatrics, Holland Bloorview Kids Rehabilitation Hospital, University of Toronto, Toronto, ON, Canada.
Hugh J McMillanDivision of Neurology, Department of Pediatrics, Children's Hospital of Eastern Ontario, University of Ottawa, Ottawa, ON, Canada.ORCID 0000-0001-8927-2018
Meilan M RutterDivision of Diabetes and Endocrinology, Cincinnati Children's Hospital Medical Center, and Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
Anne Marie SbrocchiDivision of Pediatric Endocrinology and Metabolism, Department of Pediatrics, McGill University Health Center, Montreal, QC, Canada.
Mena ScavinaParent Project Muscular Dystrophy (PPMD), Washington, DC, USA.
Jaclyn TamaroffDivision of Endocrinology and Diabetes, Department of Pediatrics, Vanderbilt University Medical Center, Nashville, TN, USA.
Cuixia TianDivision of Neurology, Cincinnati Children's Hospital Medical Center and University of Cincinnati College of Medicine, Cincinnati, OH, USA.
Leanne M WardDivision of Endocrinology and Metabolism, Department of Pediatrics, Children's Hospital of Eastern Ontario, University of Ottawa, ON, Canada.ORCID 0000-0003-1557-9185
David R WeberDivision of Pediatric Endocrinology and Diabetes, The Children's Hospital of Philadelphia and the Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.ORCID 0000-0001-6895-2372
Sze Choong WongBone, Endocrine, Nutrition Research Group in Glasgow, Human Nutrition, University of Glasgow; and Department of Pediatric Endocrinology, Royal Hospital for Children, Glasgow, UK.
Nora E RenthalDepartment of Pediatrics, Division of Endocrinology, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA.ORCID 0000-0002-8186-4462

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Many adolescents and young adults with Duchenne Muscular Dystrophy (DMD) face challenges related to sexuality, relationships, and fertility, which can negatively impact their quality of life. Current clinical guidelines emphasize the need for healthcare providers to address these aspects. Yet, there remains a lack of robust data regarding the implications of DMD on sexual and reproductive health. This article highlights the essential psychosocial topics that require attention. By reviewing existing literature and focusing on gaps in care, we aim to foster future research directions that will enhance the management and support strategies for individuals with DMD, ultimately improving their quality of life.

Indexed as

adolescencedisabilityDuchenne muscular dystrophyfertilitypubertyreproductive healthsexual health

Identifiers

PMID42439098
PMCPMC13442938

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.