ArticleJournal of autism and developmental disorders2026
Autism-Related Knowledge and Quality of Life Among Caregivers of Children and Adolescents With Autism Spectrum Disorder in Kuwait: Demographic Predictors and Implications for Family Support.
Article in Journal of autism and developmental disorders, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposeDespite growing recognition of autism spectrum disorder (ASD) in the Gulf region, little is known about how caregiver characteristics relate to ASD-related knowledge and quality of life (QoL) in Kuwait. This study examined the association between demographic factors and both ASD-related knowledge and caregiver QoL among family caregivers of children and adolescents with ASD.
methodsA cross-sectional survey was conducted with 130 unpaid family caregivers of children and adolescents with a confirmed ASD diagnosis in Kuwait. Participants completed a demographic questionnaire, the Autism Spectrum Disorder Parent/Caregiver Quality of Life questionnaire (ASDPC-QoL), and a 31-item ASD knowledge questionnaire. Chi-square tests, independent-samples t tests, and one-way ANOVAs were used to examine group differences.
resultsMost participants were mothers (68.5%) and female (82.3%). Mean knowledge was 50.7% (SD = 19.2), with 64.6% classified as having poor knowledge. Misconceptions were most prevalent regarding curability, vaccination, and exceptional abilities. Mean overall QoL was 64.7 (SD = 14.5) on a 0-100 scale, with preoccupations scoring lowest. Higher income and educational attainment were associated with better knowledge. Male caregivers reported significantly higher mental health QoL than female caregivers (d = 0.46). Mothers and caregivers of children receiving rehabilitation services reported lower mental health and overall QoL.
conclusionCaregiver knowledge gaps and QoL burden varied systematically by gender, education, income, and caregiving role. Findings support the need for targeted, culturally informed psychoeducation and mental health support for caregivers in Kuwait, particularly mothers and lower-income families.
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