ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2026
The patient journey for people with dementia and their carers in Peru: From first symptoms to diagnosis and treatment.
Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
introductionWe explored how people with dementia (PwD) and their carers navigate Peru's health system for diagnosis and treatment.
methodsWe interviewed PwD (n = 4), carers (n = 18), and healthcare workers (n = 17) from four sites. We developed a patient journey map using thematic analysis and participant validation.
resultsThree journey stages emerged. Pre-diagnosis: Families seek care across different sub-health systems and facilities 2-4 years after symptom onset. DIAGNOSIS: Specialist consultation is sought in major cities and diagnosis occurs in hospitals based on clinical presentation. Continuity of care: Care focuses on controlling behavioral and psychological symptoms, with limited access to dementia-specific drugs and non-pharmacological interventions, and heavy reliance on carers' resources. Community mental health centers (CMHCs) are preferred facilities due to geographical and specialist accessibility and perceived care quality. DISCUSSION: Without a formal entry point to dementia care, families navigate fragmented pathways, whereas CMHCs emerge as facilities with adequate care procedures for PwD.
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