Evidence map›Paper›PMID 42426960›Full record

ArticleNeurogastroenterology and motility2026

Transitioning Adolescents and Young Adults With Neurogastroenterology and Motility Disorders to Adult Care. Current Practices and Challenges in North America.

Sharon Wolfson, Neha Santucci, Lusine Ambartsumayan, Dhiren Patel, Julie Khlevner, Miguel Saps

Abstract read
In one paragraph

Article in Neurogastroenterology and motility, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Sharon WolfsonDivision of Pediatric Gastroenterology, Hepatology and Nutrition, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.ORCID https://orcid.org/0009-0001-9085-1022
Neha SantucciDivision of Pediatric Gastroenterology, Hepatology and Nutrition, Cincinnati Children's Hospital, Cincinnati, Ohio, USA.
Lusine AmbartsumayanDivision of Pediatric Gastroenterology and Nutrition, Seattle Children's Hospital, University of Washington School of Medicine, Seattle, Washington, USA.
Dhiren PatelDivision of Pediatric Gastroenterology, Hepatology and Nutrition, Cardinal Glennon Children's Hospital, Saint Louis University School of Medicine, St Louis, Missouri, USA.
Julie KhlevnerDivision of Pediatric Gastroenterology, Hepatology and Nutrition, Columbia University Vagelos College of Physicians and Surgeons, New York-Presbyterian Morgan Stanley Children's Hospital, New York, New York, USA.ORCID https://orcid.org/0000-0001-8166-0382
Miguel SapsDivision of Pediatric Gastroenterology, Hepatology and Nutrition, University of Miami, Miller School of Medicine, Miami, Florida, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPediatric neurogastroenterology and motility (NGM) disorders frequently persist into adulthood, yet there are no standardized transition of care (TOC) practices for this patient population. We characterized current TOC practices for adolescents and young adults with NGM disorders across North America.

methodsA survey was distributed through listservs for North American pediatric gastroenterologists, registered dietitians, and advanced practice providers. The survey assessed institutional characteristics, TOC practices, team structure, handoff practices, barriers, and unmet needs. KEY

resultsSixty-nine respondents from 40 unique medical centers completed the survey. Most practiced at academic medical centers (75.5%), with 66% having adult NGM providers at their institution. The majority transitioned patients at ages 18-19 years (44.1%) using patient interviews to assess readiness (61.8%), while only 2.9% used validated assessment tools. Most patients transferred to adult general gastroenterologists (76.5%) or adult NGM experts (64.7%). Infrastructure gaps were identified: 88.2% lacked transition coordinators, 91.3% had no formal transition teams, and no centers received financial support for transition services. Significant barriers reported were need for more adult NGM clinicians (60.3%) and patient hesitancy with transitioning care (58.3%). Respondents identified the greatest needs as more adult NGM clinicians, having dedicated transition coordinators, and formal transition protocols.

conclusionsThis first national survey of NGM transition practices reveals gaps in infrastructure, workforce, and standardized protocols. Addressing these deficiencies requires coordinated efforts between pediatric and adult NGM communities and healthcare institutions to establish evidence-based practices that ensure continuity of care for this vulnerable patient population.

Indexed as

GastroenterologyGastrointestinal DiseasesTransition to Adult CareAdolescentAdultFemaleHumansMaleNorth AmericaSurveys and QuestionnairesYoung Adultadolescents and young adultsDGBIneurogastroenterology and motilitytransition of care

Identifiers

PMID42426960
PMCPMC13350998

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.