Evidence map›Paper›PMID 42426322›Full record

ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2026

The Paused Pathway: Teaching Investigative Consent when Cancer Investigation Stalls.

Waseem Jerjes, Sarah Williams, Austen El-Osta, Azeem Majeed

Abstract read
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In one paragraph

Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Waseem JerjesSchool of Public Health, Faculty of Medicine, Imperial College London, London, UK. waseem.jerjes@nhs.net.ORCID http://orcid.org/0000-0002-6914-7401
Sarah WilliamsCancer Survivor Advocate, London, UK.
Austen El-OstaSelf-Care Academic Research Unit and Primary Care Research Manager, School of Public Health, Faculty of Medicine, Imperial College London, London, UK.
Azeem MajeedChair and Professor of Primary Care and Public Health, School of Public Health, Faculty of Medicine, Imperial College London, London, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Suspected cancer pathways are often taught as linear sequences, but in practice they may pause when patients miss appointments, decline investigations, misunderstand the pathway, or face emotional, practical, relational or access-related barriers. This article proposes investigative consent as a teachable cancer education skill. Investigative consent means helping patients understand not only a proposed test, but the diagnostic journey it may open, including uncertainty, follow-up, alternatives, and the distinction between diagnosis and treatment. For learners, a paused pathway should not be reduced to "patient declined" or "did not attend". Instead, it should prompt careful enquiry into what has been declined, why, by whom, and with what understanding. Teaching should emphasise clarification rather than persuasion, explicit ownership of follow-up, equity-sensitive adaptation, and respectful documentation of settled refusal. Reframing the paused cancer pathway as a learning event can strengthen patient-centred cancer communication and safer continuity of care.

Indexed as

Cancer educationInvestigative consentPatient refusalSafety-nettingShared decision-makingSuspected cancer pathway

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.