Evidence map›Paper›PMID 42424328›Full record

ArticleJournal of participatory medicine2026

Experiences and Challenges of Patients With Chronic Respiratory Disease During a Virtual Research Study: Qualitative Study.

Noah Tregobov, Austin McMillan, Aditya Dhariwal, Y Sarah Chae, Bahareh Poureslami, Maryam Mahjoob, Joshua Block, Iraj Poureslami

Abstract read
In one paragraph

Article in Journal of participatory medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Noah TregobovVancouver-Fraser Medical Program, The University of British Columbia, 317-2194 Health Sciences Mall, Vancouver, BC, V6T 1Z3, Canada, 1 604 822 2421.ORCID http://orcid.org/0000-0002-7901-8179
Austin McMillan *Division of Respiratory Medicine, Centre for Heart and Lung Health, Vancouver Coastal Health Research Institute, Vancouver, BC, Canada.ORCID http://orcid.org/0009-0007-8900-6466
Aditya Dhariwal *Department of Occupational Science and Occupational Therapy, The University of British Columbia, Vancouver, BC, Canada.ORCID http://orcid.org/0009-0002-3975-6633
Y Sarah ChaeFaculty of Health Sciences, Simon Fraser University, Vancouver, BC, Canada.ORCID http://orcid.org/0009-0006-3965-7538
Bahareh PoureslamiBienen School of Music, Northwestern University, Evanston, IL, United States.ORCID http://orcid.org/0009-0000-7090-840X
Maryam MahjoobDivision of Respiratory Medicine, Centre for Heart and Lung Health, Vancouver Coastal Health Research Institute, Vancouver, BC, Canada.ORCID http://orcid.org/0000-0001-7018-6320
Joshua BlockDeparment of Mechanical and Materials Engineering, Queen's University, Kingston, ON, Canada.ORCID http://orcid.org/0009-0006-9593-7841
Iraj PoureslamiDivision of Respiratory Medicine, Centre for Heart and Lung Health, Vancouver Coastal Health Research Institute, Vancouver, BC, Canada.ORCID http://orcid.org/0000-0003-2878-7776

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Virtual research has emerged as a promising and convenient approach. This study investigates the experiences and challenges faced by patients with chronic respiratory diseases who participated in a virtual research study. Objective: This study aimed to explore the experiences of adults with chronic respiratory diseases participating in a virtual research study and to identify challenges they encountered to inform future virtual research design and implementation. Methods: Adults with a diagnosis of asthma or chronic obstructive pulmonary disease taking medications for their condition were recruited from the Greater Vancouver Area. A total of 185 participants completed an asthma-specific or chronic obstructive pulmonary disease-specific health literacy measurement tool through telephone interviews and then completed a postinterview checklist (n=36) or survey (n=149) on their experience with virtual research. To test the health literacy tool's reproducibility, 110 participants were retested and completed the same checklist (n=79) or survey (n=31). Interviews were transcribed and thematic analyses were conducted on interviews, surveys, and checklists. Results: Six overarching themes were identified: overall experience with virtual research, clarity of instructions, technology, communication, condition and cognition, and logistics. While participants generally reported a positive experience, the study identified significant challenges, including technological barriers, the need for clear and concise instructions, mental fatigue, and communication difficulties. Conclusions: These findings highlight the importance of providing comprehensive technical support, ensuring clear communication, and addressing ethical considerations in virtual research. This study contributes valuable insights to the growing body of literature on the viability and challenges of virtual research in health care.

Indexed as

health literacyqualitative methodsresearch challengesrespiratory diseasesvirtual research

Identifiers

PMID42424328
PMCPMC13348803

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.