Evidence map›Paper›PMID 42416629›Full record

ArticleJCPP advances2026

Language interventions for autistic people: An online survey of community member views and priorities.

Audrey Linden, Courtenay Norbury, Molly McCabe, Jo Saul, Estelle Killick, Evelyn Sam, Simone Dufresne, Freya Elise, Kurinchi Gurusamy, Laura Crane

Abstract read
In one paragraph

Article in JCPP advances, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Audrey LindenCentre for Research in Autism and Education (CRAE) UCL Institute of Education University College London London UK.ORCID https://orcid.org/0000-0002-2255-4958
Courtenay NorburyDepartment of Clinical Educational and Health Psychology University College London London UK.ORCID https://orcid.org/0000-0002-5101-6120
Molly McCabeCentre for Research in Autism and Education (CRAE) UCL Institute of Education University College London London UK.ORCID https://orcid.org/0009-0007-9556-4296
Jo SaulDepartment of Clinical Educational and Health Psychology University College London London UK.ORCID https://orcid.org/0000-0002-8498-2851
Estelle KillickCentre for Research in Autism and Education (CRAE) UCL Institute of Education University College London London UK.
Evelyn SamCentre for Research in Autism and Education (CRAE) UCL Institute of Education University College London London UK.
Simone DufresneEliot-Pearson Department of Child Study & Human Development Tufts University Medford Massachusetts USA.ORCID https://orcid.org/0000-0003-2880-7917
Freya EliseCentre for Research in Autism and Education (CRAE) UCL Institute of Education University College London London UK.ORCID https://orcid.org/0000-0002-2565-9966
Kurinchi GurusamyDepartment of Surgical Biotechnology University College London London UK.ORCID https://orcid.org/0000-0002-0313-9134
Laura CraneCentre for Research in Autism and Education (CRAE) UCL Institute of Education University College London London UK.ORCID https://orcid.org/0000-0002-4161-3490

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Identifying interventions for developing language skills in autistic people is a top research priority. To develop effective language interventions, it is essential to understand whether community members feel they are important, acceptable, and meaningful. The aim of our research was to elicit views from members of the autism community on language and language interventions for autistic people. Methods: Our diverse team (comprising those with lived and professional experience of autism and/or language interventions) achieved our goals using an online survey. Via opportunity sampling, we recruited 356 participants including autistic adults, parents of autistic children, and professionals/researchers working with autistic people. Data were thematically analyzed. Results: Participants recognised the importance of language for self-advocacy, societal participation, interacting with others, and expressing needs, feelings and desires. Language was seen as a potential tool for communication, but one of crucial importance in navigating a world designed for non-autistic people. Responses also strongly emphasised the importance of language interventions being focused on autistic people's individual needs, that benefit them, allow them to be their authentic selves, and prioritise choice and agency. Conclusion: Our research highlights the importance of including community voices in the development of language interventions. Future language interventions should be individualised to a person's needs and wishes, respect autistic people's identity, and support self-advocacy. Subsequent work should ensure that seldom-heard voices are centered in such discussions.

Indexed as

autismcommunity involvementethicsinterventionslanguage

Identifiers

PMID42416629
PMCPMC13338969

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.