Evidence map›Paper›PMID 42406418›Full record

ArticleThe Gerontologist2026

Consumer-reported quality indicators for publicly funded home- and community-based services: development and validation.

Tetyana P Shippee, Jack M Wolf, Romil R Parikh, Benjamin Langworthy, Yinfei Duan, Stephanie Giordano, Eric Jutkowitz

Abstract readValidation Study
In one paragraph

Article in The Gerontologist, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Tetyana P ShippeeDivision of Health Policy & Management, University of Minnesota School of Public Health, Minneapolis, Minnesota, United States.ORCID 0000-0003-1804-2527
Jack M WolfDivision of Biostatistics & Health Data Science, University of Minnesota School of Public Health, Minneapolis, Minnesota, United States.
Romil R ParikhDivision of Health Policy & Management, University of Minnesota School of Public Health, Minneapolis, Minnesota, United States.ORCID 0000-0001-6087-0583
Benjamin LangworthyDivision of Biostatistics & Health Data Science, University of Minnesota School of Public Health, Minneapolis, Minnesota, United States.ORCID 0000-0001-6735-3853
Yinfei DuanFaculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.ORCID 0000-0003-2720-5359
Stephanie GiordanoHuman Services Research Institute, Cambridge, Massachusetts, United States.
Eric JutkowitzDivision of Health Policy & Management, University of Minnesota School of Public Health, Minneapolis, Minnesota, United States.

Funding

Person-Reported and Health Care Utilization Outcomes of Home and Community Based Care Recipients With and Without Alzheimer's Disease and its Related DementiasRF1AG069771 · NIA · UNIVERSITY OF MINNESOTA · PI JUTKOWITZ, ERIC, SHIPPEE, TETYANA P. · 2020 to 2023
$2.4M
Microsimulation Modeling to Compare the Effectiveness and Cost-Effectiveness of Nondrug Interventions to Manage Clinical Symptoms in Racially/Ethnically Diverse Persons with DementiaR01AG060871 · NIA · BROWN UNIVERSITY · PI JUTKOWITZ, ERIC · 2019 to 2022
$1.7M
Person-Reported and Health Care Utilization Outcomes of Home and Community Based Care Recipients With and Without Alzheimer's Disease and its Related DementiasR01AG069771 · NIA · UNIVERSITY OF MINNESOTA · PI JUTKOWITZ, ERIC, SHIPPEE, TETYANA P. · 2024 to 2024
$514k
National Institute on Aging of the National Institutes of Health 1R01AG069771-01/1RF1AG069771-01/1R01AG060871NIA NIH HHS R01 AG060871NIA NIH HHS R01 AG069771NIA NIH HHS RF1 AG069771
6 · The paper itself

Abstract

BACKGROUND AND

objectivesConsumer-reported measures are important quality indicators for ensuring person-centeredness in home and community-based services (HCBS). However, administrative data commonly used to assess HCBS quality often lacks consumer-reported measures. To address this gap, we developed and validated novel consumer-reported quality indicators using data from the National Core Indicators-Aging and Disability (NCI-AD) Adult Consumer Survey. RESEARCH DESIGN AND

methodsWe conducted exploratory factor analyses using the 2018-2019 survey wave of NCI-AD (n = 5,572 community-dwellingolder consumers, age ≥65 years) and identified seven QIs. We then confirmed the validity of these seven new QIs in 2 ways: (a) qualitatively through a technical expert panel (for face validity and contextualization) and (b) quantitatively, using confirmatory factor analyses in the 2017-2018 survey wave (n = 9,145 community-dwelling consumers, age ≥65 years).

resultsThe seven validated QIs were service satisfaction, staff quality, environmental safety, service decision-making, daily life decision-making, community inclusion, and overall health and quality of life. Internal consistency was strong across domains (Cronbach's alpha = 0.63-0.89; McDonald's omega = 0.70-0.90). Exploratory analyses also identified differences in selected QI scores by dementia status and age. DISCUSSION AND IMPLICATIONS: These seven consumer-reported QIs provide a practical, validated framework for evaluating person-centered HCBS quality. They can support researchers, providers, and policymakers in monitoring service quality, identifying modifiable targets for improvement, and advancing quality measurement in publicly funded HCBS.

Indexed as

Community Health ServicesHome Care ServicesQuality Indicators, Health CareAgedAged, 80 and overFactor Analysis, StatisticalFemaleHumansIndependent LivingMalePatient-Centered CareReproducibility of ResultsSurveys and QuestionnairesUnited StatesHome and community-based services (HCBS)Medicaid long-term services and supports (LTSS)Person-centered careQuality measurement

Identifiers

PMID42406418
PMCPMC13366117

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.