Evidence map›Paper›PMID 42400079›Full record

ArticleResearch involvement and engagement2026

"If the funders said to me that I have to dress in orange, I would dress in orange": findings from qualitative interviews on researchers' experiences of public involvement.

Lili Gyopár, Kirsten Bell, Viveka Guzman, Habiba Haque, Amna Rida, Paapa Baffoe, Dave Varughese, Helen Ward

Abstract read
In one paragraph

Article in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Lili GyopárPatient Experience Research Centre (PERC), School of Public Health, Imperial College, London, UK.
Kirsten BellPatient Experience Research Centre (PERC), School of Public Health, Imperial College, London, UK. k.bell@imperial.ac.uk.
Viveka GuzmanPatient Experience Research Centre (PERC), School of Public Health, Imperial College, London, UK.
Habiba HaquePERC community partner, London, UK.
Amna RidaPatient Experience Research Centre (PERC), School of Public Health, Imperial College, London, UK.
Paapa BaffoePatient Experience Research Centre (PERC), School of Public Health, Imperial College, London, UK.
Dave VarughesePatient Experience Research Centre (PERC), School of Public Health, Imperial College, London, UK.
Helen WardPatient Experience Research Centre (PERC), School of Public Health, Imperial College, London, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPublic involvement is increasingly mandated in health and medical research in the UK. With a push for its implementation from major funding bodies over the past few decades, we aimed to understand its current role in research through the lens of researchers - has it become embedded into their research or is it mostly a tokenistic exercise? In this qualitative interview project, we add to the growing body of literature on this topic by exploring researchers' experiences with public involvement to better understand their views, motivations and attitudes towards these practices.

methodsIn 2025, 15 semi-structured online interviews were conducted with biomedical researchers in the NIHR Imperial Biomedical Research Centre about their experiences of public involvement. The interviews were conducted for evaluation purposes and were carried out by undergraduate medical students as part of their research methods training. Thematic and inductive analysis was used to identify key themes across the data. The project was supported by a community partner, who helped in the development of the interview guide and data analysis.

resultsFunding mandates played a significant role in researchers' motivations for conducting public involvement and appear to have created a distinction between an imposed model of public involvement, in which it is 'unreflective' and 'box-ticking', and an organic model in which it is 'sincere' and 'meaningful'. Participants highlighted the discrepancies between funders' expectations and the realities of academic research, including the limited resources available for public involvement. The feasibility and desirability of public involvement in different research areas was also questioned, especially in non-clinical research. Although researchers frequently reported that doing public involvement made them see the value of it, most of the impacts they identified were intangible rather than tangible.

conclusionsStrengthening meaningful public involvement requires further investment from funders and institutions, along with a more tailored approach for different research areas rather than a 'one-size-fits-all' orientation. We support calls for an expanded view of impact that treats it as a dialogue between researchers and the public rather than an intervention with measurable effects.

Indexed as

ImpactPatient and public involvementQualitative interviewsResearchers’ views

Identifiers

PMID42400079
PMCPMC13330384

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