Evidence map›Paper›PMID 42394958›Full record

ArticleSSM. Qualitative research in health2026

Turning Points in Prognostic Uncertainty Across the Disease Trajectory For Emerging and Young Adult Caregivers of a Parent with Advanced Cancer.

Amanda Kastrinos, Rebecca R Gebert, Leah E Walsh, Diliara Bagautdinova, Carma L Bylund, Allison J Applebaum, Carla L Fisher

Abstract read
In one paragraph

Article in SSM. Qualitative research in health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Amanda KastrinosMedical University of South Carolina, Department of Public Health Sciences, Charleston, South Carolina.
Rebecca R GebertMemorial Sloan Kettering Cancer Center, Department of Psychiatry and Behavioral Sciences, New York, New York.
Leah E WalshIcahn School of Medicine at Mount Sinai, Mount Sinai Health Systems, New York, New York.
Diliara BagautdinovaDepartment of Oncology, Karmanos Cancer Institute, Wayne State University School of Medicine, Detroit, Michigan.
Carma L BylundDepartment of Health Outcomes and Behavioral Informatics, University of Florida College of Medicine, Gainesville, Florida.
Allison J ApplebaumIcahn School of Medicine at Mount Sinai, Mount Sinai Health Systems, New York, New York.
Carla L FisherDepartment of Health Outcomes and Behavioral Informatics, University of Florida College of Medicine, Gainesville, Florida.

Funding

X-RAY CRYSTALLOGRAPHYP30CA008748 · NCI · SLOAN-KETTERING INSTITUTE FOR CANCER RES · PI SELWYN M VICKERS · 1985 to 2026
$347.4M
Psychosocial Palliative & Community Research in CancerT32CA009461 · NCI · SLOAN-KETTERING INSTITUTE FOR CANCER RES · PI JENNIFER L HAY, Jamie S. Ostroff · 1985 to 2026
$10.1M
Developing a communication support intervention for cancer caregivers in emerging and young adulthoodK99CA279651 · NCI · SLOAN-KETTERING INST CAN RESEARCH · PI KASTRINOS, AMANDA · 2024 to 2025
$270k
NCI NIH HHS K99 CA279651NCI NIH HHS P30 CA008748NCI NIH HHS T32 CA009461
6 · The paper itself

Abstract

Emerging and young adult caregivers (EYACs, aged 18-35) of a parent with cancer are an understudied, under-resourced, and growing caregiving population. Little is known about their experiences coping with and managing distressing uncertainty about their parent's prognosis, which is even more distressing when their parent is living with advanced cancer. It is critical to better understand what impacts EYACs' prognosis uncertainty as their parent's disease continues to progress to better support their psychosocial needs and promote adaptive coping and adjustment. We conducted interviews with recently bereaved EYACs (

Indexed as

cancercaregivingcommunicationfamilyquality of lifeuncertaintyyoung adults

Identifiers

PMID42394958
PMCPMC13326736

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.