ArticleEpilepsy & behavior reports2026
Caregiver burden and associated factors among primary caregivers of children with epilepsy in southwestern Uganda.
Article in Epilepsy & behavior reports, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Background: Globally, caregiver burden in childhood epilepsy is recognized as a major public health concern. However, this phenomenon remains under-studied in Uganda. Objective: To assess the prevalence of caregiver burden and identify caregiver- and child-related factors associated with it among primary caregivers of children with epilepsy in Rubanda District, Southwestern Uganda. Methods: A cross-sectional study was conducted among 288 primary caregivers of children with epilepsy attending Health Centre IV facilities in Rubanda District. Caregiver burden was assessed using the 22-item Zarit Burden Interview (ZBI-22). Descriptive statistics summarized caregiver burden levels, while bivariable and multivariable linear regression analyses identified factors associated with caregiver burden. Results: Overall, 172 caregivers (59.7%) experienced caregiver burden, including 145 (50.4%) with mild-to-moderate burden. Higher caregiver burden was significantly associated with older caregiver age (β = 0.18, 95% CI 0.06-0.31; Conclusion: Caregiver burden is highly prevalent among caregivers of children with epilepsy in rural Southwestern Uganda and is influenced by both caregiver characteristics and child-related clinical factors. Integrating caregiver-focused psychosocial support into epilepsy care services may help reduce caregiver burden and improve outcomes for children and their families in resource-limited settings.
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