Evidence map›Paper›PMID 42388227›Full record

ArticleAsia-Pacific journal of oncology nursing2026

A post-discharge homecare journey map for patients with colorectal cancer living with a permanent stoma: A qualitative study.

Jia Qiao, Shenghua Jia, Yu Zhang, Songmei Cao, Haijing Dong

Abstract read
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Article in Asia-Pacific journal of oncology nursing, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

5 authors.

Jia QiaoColorectal Surgery Department, Qingdao Municipal Hospital Group, Qingdao, China.
Shenghua JiaGastrointestinal Surgery Department 1, Qingdao Municipal Hospital Group, Qingdao, China.
Yu ZhangGastrointestinal Surgery Department 1, Qingdao Municipal Hospital Group, Qingdao, China.
Songmei CaoDepartment of Nursing, Affiliated Hospital of Jiangsu University, Zhenjiang, China.
Haijing DongDepartment of Nursing, Qingdao Municipal Hospital Group, Qingdao, China.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: To develop a stage-based post-discharge homecare journey map for patients with colorectal cancer living with a permanent stoma, integrating patient-caregiver dynamics to inform digitally supported nursing interventions. Methods: A qualitative study was conducted using semi-structured interviews with 15 patients aged 18-59 years, 6 informal caregivers, and 4 stoma nurses. Patient diaries and photo-elicitation were used as supplementary data sources. Data were analyzed using a framework approach informed by the Chronic Care Model and the Theoretical Domains Framework. Two rounds of Delphi consultation with 8 multidisciplinary experts were undertaken to refine the structure and content of the journey map. Results: Five sequential phases of the post-discharge homecare journey were identified: Home Transition, Early Adaptation, Late Adjustment, Chronic Challenge, and Stabilization. Across phases, participants described fluctuating emotional responses, strong bidirectional influences between patients and caregivers, variable engagement with digital resources, and discrepancies between perceived and actual self-management capacity. Key critical events-such as stoma leakage, concerns about public exposure, and caregiver-patient conflict-frequently triggered setbacks in recovery and reduced self-care confidence. Conclusions: The proposed journey map provides a structured, stage-based framework for understanding post-discharge homecare experiences. It offers a conceptual foundation for developing personalized, digitally supported nursing interventions that address emotional needs, dyadic interactions, and disparities in health and digital literacy.

Indexed as

Colorectal cancerDigital nursing interventionsHomecare journeyPermanent stomaPost-discharge careSelf-management

Identifiers

PMID42388227
PMCPMC13321035

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.