Evidence map›Paper›PMID 42387920›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2026

Powerless or Powerful? Healthcare Professionals' Construction of Agency in Patient and Family Engagement Accounts.

Polina Mesinioti, Laura Sheard, Sarah Hampton, Gemma Louch, Carl Macrae, Jane O'Hara

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

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4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

6 authors.

Polina MesiniotiDepartment of Health Sciences, University of York, York, UK.ORCID 0000-0002-2071-7303
Laura SheardSchool of Health Sciences, University of Manchester, Manchester, UK.
Sarah HamptonUniversity College London (UCL), London, UK.
Gemma LouchSchool of Healthcare, University of Leeds, Leeds, UK.ORCID 0000-0001-6946-3693
Carl MacraeNottingham University Business School, University of Nottingham, Nottingham, UK.
Jane O'HaraThe Healthcare Improvement Studies (THIS) Institute, University of Cambridge, Cambridge, UK.

Funding

Health Foundation RHZF/001-RG88620National Institute for Health and Care Research NIHR133742
6 · The paper itself

Abstract

backgroundPatient safety incidents cause substantial harm globally, with affected patients and families often experiencing additional 'compounded harm' from inadequate organisational responses. Despite policy imperatives emphasising engagement as essential for safety improvement, significant gaps persist in the National Health Service (NHS), where involvement in Serious Incident (SI) investigations is often overlooked or treated as a passive process. While previous qualitative research has primarily used thematic analysis, discourse analytic approaches can offer deeper insights into nuanced patterns of meaning. DESIGN/

objectiveWe conducted discourse analysis on 49 semi-structured interviews with healthcare professionals across six NHS Trusts to examine how staff construct agency in their accounts of engaging patients and families in SI investigations and how these discourses are linked to the broader organisational context.

resultsFindings illustrate two prevailing but contested discourses: one depicting staff engagement with patients and families as inconsistent and limited, and the other emphasising their integral role in the investigation process. Interviewees framed themselves as either powerless or powerful, aligning with these respective discourses, while organisational factors, such as professional roles and work relationships, also influenced those constructions. DISCUSSION: A focus on the linguistic construction of agency, control and responsibility provides a powerful lens for understanding persistent gaps in patient and family engagement and highlights the value of incorporating discourse analytic approaches into health policy development and implementation. PATIENT OR PUBLIC CONTRIBUTION: A Citizens' Panel (n = 16) was involved throughout the broader research programme, ensuring public accountability; supporting wider discussions about the emergent findings of the research and their implications for fairness, equality, diversity and inclusion; and supporting the dissemination of findings in creative and accessible ways.

Indexed as

FamilyHealth PersonnelPatient ParticipationPatient SafetyHumansInterviews as TopicMedical ErrorsQualitative ResearchState MedicineUnited Kingdomagencydiscourse analysishealth policypatient and family engagementpatient safetypatient safety incident

Identifiers

PMID42387920
PMCPMC13323832

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.