Evidence map›Paper›PMID 42385876›Full record

ArticleValue in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research2026

Development and Validation of a Brief Healthcare Insecurity Scale in a Sample of US Adults Living With and Without HIV.

Sigal Maya, Hilary J Bethancourt, Andrea Norcini Pala, Edward A Frongillo, Mirjam-Colette Kempf, Igho Ofotokun, Sarah Krier, Valentina Stosor, Sheri D Weiser, Bulent Turan and 1 more

Abstract read
In one paragraph

Article in Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

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0cells of the map it votes in
1citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

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3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Sigal MayaPhilip R. Lee Institute for Health Policy Studies, University of California San Francisco, San Francisco, CA, USA; Institute for Global Health Sciences, University of California San Francisco, San Francisco, CA, USA. Electronic address: sigal.maya@ucsf.edu.
Hilary J BethancourtDepartment of Medicine, University of California San Francisco, San Francisco, CA, USA.
Andrea Norcini PalaDepartment of Community Health Sciences, SUNY Downstate Health Sciences University, Brooklyn, NY, USA.
Edward A FrongilloDepartment of Health Promotion, Education, and Behavior, Arnold School of Public Health, University of South Carolina, Columbia, SC, USA.
Mirjam-Colette KempfSchools of Nursing, Medicine, and Public Health, University of Alabama at Birmingham, Birmingham, AL, USA.
Igho OfotokunSchool of Medicine, Emory University, Atlanta, GA, USA.
Sarah KrierDepartment of Infectious Diseases & Microbiology, University of Pittsburgh, Pittsburgh, PA, USA.
Valentina StosorSchool of Medicine, Northwestern University, Evanston, IL, USA.
Sheri D WeiserDepartment of Medicine, University of California San Francisco, San Francisco, CA, USA.
Bulent TuranDepartment of Psychology, University of Alabama at Birmingham, Birmingham, AL, USA; Department of Psychology, Koç University, Istanbul, Turkey.
Material Needs and Health Working Group

Funding

Virology CoreP30AI027767 · NIAID · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI Paul A. Goepfert · 1988 to 2026
$84.1M
Engaging University of California Stakeholders for Biorespository ResearchUL1TR000004 · NCATS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI GRANDIS, JENNIFER RUBIN · 2012 to 2015
$78.0M
Virology, Immunology, and Microbiology CoreP30AI050410 · NIAID · UNIV OF NORTH CAROLINA CHAPEL HILL · PI DAVID M. MARGOLIS · 2001 to 2026
$76.9M
Virology and Molecular Biomarkers CoreP30AI050409 · NIAID · EMORY UNIVERSITY · PI Ann M Chahroudi, Colleen F Kelley · 2002 to 2026
$74.0M
QAQC Johns Hopkins Institute for Clinical and Translational ResearchUL1TR003098 · NCATS · JOHNS HOPKINS UNIVERSITY · PI FORD, DANIEL ERNEST · 2019 to 2023
$57.7M
Maternal Morbidity and Mortality: Risk Factors, Early Detection and Personalized InterventionUL1TR001409 · NCATS · GEORGETOWN UNIVERSITY · PI GONDRE-LEWIS, MARJORIE C, MELLMAN, THOMAS A · 2015 to 2024
$37.8M
Clinical Research Sites for the MACS/WIHS Combined Cohort Study (MACS/WIHS-CCS) - Baltimore/Wash DC Center - Admin Supplement: Vision and dual sensory loss in HIV-infected older adultsU01HL146201 · NHLBI · JOHNS HOPKINS UNIVERSITY · PI TODD T BROWN, Joseph B. Margolick · 2019 to 2026
$33.7M
Sex differences in the role of multi-omics in HIV-associated carotid artery atherosclerosisU01HL146204 · NHLBI · ALBERT EINSTEIN COLLEGE OF MEDICINE · PI David B. Hanna, Anjali Sharma · 2019 to 2026
$33.2M
University of Pittsburgh MWCCS Clinical Research SiteU01HL146208 · NHLBI · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI Bernard Jonas C Macatangay, CHARLES R RINALDO · 2019 to 2026
$32.2M
Study of Hearing and Balance in Middle Aged and Aging Men and Women in the MACS-WIHS Combined Cohort StudyU01HL146333 · NHLBI · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI Roger Detels, Matthew James Mimiaga · 2019 to 2026
$32.2M
Northwestern CORE Clinical Research Site: Trans-omics for HIV/AIDS ResearchU01HL146240 · NHLBI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI Frank J Palella, Valentina Stosor · 2019 to 2026
$31.5M
MACS/WIHS Combined Cohort Study Clinical Research SiteU01HL146241 · NHLBI · EMORY UNIVERSITY · PI Cecile Delille Lahiri, Anandi Nayan Sheth · 2019 to 2026
$24.2M
NCATS NIH HHS KL2 TR001432NCATS NIH HHS TL1 TR001431NCATS NIH HHS UL1 TR000004NCATS NIH HHS UL1 TR001409NCATS NIH HHS UL1 TR003098NHLBI NIH HHS R01 HL155226NHLBI NIH HHS U01 HL146192NHLBI NIH HHS U01 HL146201NHLBI NIH HHS U01 HL146202NHLBI NIH HHS U01 HL146203NHLBI NIH HHS U01 HL146204NHLBI NIH HHS U01 HL146208NHLBI NIH HHS U01 HL146240NHLBI NIH HHS U01 HL146241NHLBI NIH HHS U01 HL146245NHLBI NIH HHS U01 HL146333NIAID NIH HHS P30 AI027767NIAID NIH HHS P30 AI050409NIAID NIH HHS P30 AI050410NIMH NIH HHS K01 MH125724NIMH NIH HHS R01 MH131177
6 · The paper itself

Abstract

objectivesHealthcare insecurity is pervasive in the United States and abroad, with implications for health, particularly among people living with chronic conditions. Yet, a common definition is lacking and current measures are limited.

methodsWe developed and validated an 8-item healthcare insecurity scale (HCIS) using cross-sectional data collected from 2021 to 2022 from individuals living with and without HIV in the United States (n = 2513). Psychometric properties were assessed through confirmatory factor analysis and item response theory models, and measurement invariance was tested. Criterion and convergent validity were evaluated by examining associations between HCIS scores and health insurance status, socioeconomic factors, perceived stress, and self-reported physical, mental, and general health, adjusting for income and demographics.

resultsThe unidimensional scale demonstrated good local fit and sufficient global fit. Each item was strongly correlated with the latent trait of healthcare insecurity (standardized factor loadings ranging from 0.69 to 0.90). The scale showed strong measurement invariance across groups defined by HIV serostatus and gender. Mean (SD) HCIS scores were 1.2 (2.5). Higher scores among those with no health insurance demonstrated criterion validity. Higher scores among those with lower income, unemployment, or disability, as well as strong positive associations between HCIS scores and perceived stress and self-reported health supported convergent validity.

conclusionsThe HCIS is a psychometrically sound tool for comprehensively assessing healthcare insecurity in people living with or vulnerable to HIV, even in a sample highly linked to care. The brevity and scope of HCIS support its applicability in research on healthcare insecurity beyond access to health insurance.

Indexed as

confirmatory factor analysishealthcare accesshealthcare securityitem response theoryscale validation

Identifiers

PMID42385876
PMCPMC13603063

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.