Evidence map›Paper›PMID 42382182›Full record

ArticleKidney international reports2026

Validation of the Standardized Outcomes in Nephrology - Life Participation (SONG-LP) Instrument in People Receiving Dialysis.

Cameron Thomas Burnett, Anastasia Hughes, Allison Jaure, Angela Ju, Chandana Guha, Martin Howell, Karine Manera, Melissa Cheetham, Martin Wilkie, Fiona Loud and 15 more

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In one paragraph

Article in Kidney international reports, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

25 authors.

Cameron Thomas BurnettDepartment of Kidney and Transplant Services, Princess Alexandra Hospital, Woolloongabba, Queensland, Australia.
Anastasia HughesSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Allison JaureSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Angela JuSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Chandana GuhaSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Martin HowellSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Karine ManeraSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Melissa CheethamFaculty of Health, Medicine, and Behavioral Science, University of Queensland, Brisbane, Queensland, Australia.
Martin WilkieDepartment of Nephrology, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK.
Fiona LoudKidney Care UK, Alton, UK.
Ana FigueiredoSchool of Health Sciences and Life, Nursing School, Pontificia Universidade Católica do Rio Grande do Sul, Porto Alegre, Brazil.
Catherine CheungDepartment of Nephrology, Fraser Health, New Westminster, British Columbia, Canada.
Daniel SchwartzDivision of Nephrology, Department of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
Helen HurstSchool of Health and Society, University of Salford, UK.
Janine FarragherDepartment of Occupational Science and Occupational Therapy, University of Toronto, Ontario, Canada.
Jenny ShenDivision of Nephrology and Hypertension, The Lundquist Institute at Harbor-UCLA Medical Center, Torrance, California, USA.
Rachael L MortonNHMRC Clinical Trials Centre, University of Sydney, New South Wales, Australia.
Rachael C WalkerSchool of Nursing, University of Auckland, Auckland, New Zealand.
Rajnish MehrotraDivision of Nephrology, Department of Medicine, Kidney Research Institute, University of Washington, Seattle, Washington, USA.
Thyago MoraesPost-Graduate Program in Health and Biological Sciences, School of Medicine, Pontifícia Universidade Católica do Paraná, Brazil.
Sarbjit V JassalDivision of Nephrology, Department of Medicine, University Health Network, University of Toronto, Ontario, Canada.
Armando Teixeira-PintoSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Jonathan C CraigCollege of Medicine and Public Health, Flinders Health and Medical Research Institute, Flinders University, Adelaide, Australia.
David W JohnsonDepartment of Kidney and Transplant Services, Princess Alexandra Hospital, Woolloongabba, Queensland, Australia.
Yeoungjee ChoDepartment of Kidney and Transplant Services, Princess Alexandra Hospital, Woolloongabba, Queensland, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Life participation (LP) has been identified as a critically important core outcome for trials in people receiving dialysis. We aimed to validate the Standardized Outcomes in Nephrology-LP (SONG-LP) instrument in people receiving dialysis. Methods: A psychometric evaluation of the SONG-LP instrument in adults receiving dialysis (including hemodialysis [HD] and peritoneal dialysis [PD]) was completed through a multinational online survey. Internal consistency, test-retest reliability, convergent validity, discriminant validity, and known group comparisons (for dialysis modality and dialysis duration) were assessed. Results: In total, 250 adults receiving dialysis (69 PD, 47 home HD, and 134 in-center HD) from 13 countries completed surveys at baseline, and 204 participants (82%) completed the survey 1 week later. The SONG-LP instrument demonstrated strong internal consistency (Cronbach's α = 0.89, 95% confidence interval [CI]: 0.87-0.91, baseline) and test-retest reliability over 1 week (intraclass correlation coefficient [ICC] of 0.76, 95% CI: 0.70-0.81). There was a high correlation (0.76, 95% CI: 0.69-0.81) with the Patient-Reported Outcomes Measurement Information System (PROMIS) Ability to Participate in Social Roles and Activities (APS) Short Form 8a. There was moderate to high correlation with measures assessing concepts related to LP measured by the EuroQol-5 Dimension (EQ-5D) (0.62, 95% CI: 0.53 - 0.69) and PROMIS Cognitive Functional Abilities Subset Short Form 4a (0.49, 95% CI: 0.38 - 0.57). Conclusion: The SONG-LP instrument is an internally consistent and reliable measure of LP for people receiving dialysis. This study provides preliminary evidence supporting its psychometric validity, offering a foundation for further evaluation of its use in clinical trials.

Indexed as

core outcomedialysishemodialysislife participationperitoneal dialysispsychometric evaluation

Identifiers

PMID42382182
PMCPMC13315837

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.