Evidence map›Paper›PMID 42382181›Full record

ArticleFrontiers in dementia2026

From community to policy: a frontline model for dementia assessment and brain health.

Kyle DeDecker, Ngozi Iroanyah, Adam Morrison, Julie Datta, Ibukun-Oluwa Omolade Abejirinde, Caitlin R Siu, Christina Stergiou-Dayment, Shawn Paron, Christa M Studzinski

Abstract read
In one paragraph

Article in Frontiers in dementia, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Kyle DeDeckerAlzheimer Society of Ontario, Toronto, ON, Canada.
Ngozi IroanyahAlzheimer Society of Ontario, Toronto, ON, Canada.
Adam MorrisonAlzheimer Society of Ontario, Toronto, ON, Canada.
Julie DattaAlzheimer Society of Ontario, Toronto, ON, Canada.
Ibukun-Oluwa Omolade AbejirindeInstitute for Better Health, Trillium Health Partners, Mississauga, ON, Canada.
Caitlin R SiuOntario Brain Institute, Toronto, ON, Canada.
Christina Stergiou-DaymentAlzheimer Society of Ontario, Toronto, ON, Canada.
Shawn ParonAlzheimer Society of Ontario, Toronto, ON, Canada.
Christa M StudzinskiOntario Brain Institute, Toronto, ON, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Globally, dementia prevalence is projected to rise from approximately 55 million people in 2025 to 139 million by 2050. In Ontario, prevalence is estimated to reach 756,100 people by 2050-an increase of 202% since 2020-placing increasing strain on care partners, families, and health systems (Alzheimer Society of Canada, 2022). Throughout Ontario and Canada more broadly, existing pathways for cognitive screening, assessment, and diagnosis are constrained by limited primary care capacity, prolonged specialist wait times, and inequitable access, leaving many individuals without timely assessment or connection to supports. To help address these gaps, the Alzheimer Society of Ontario (ASO) and the Ontario Brain Institute (OBI) leveraged an existing community-delivered cognitive assessment process and enhanced it through the co-development of a provincial dementia registry-the first of its kind in Canada. This novel integrated approach embeds structured cognitive and functional assessment within community organizations, shares assessment results with primary care, and links standardized data to a provincial registry infrastructure. Together, this supports timely identification of cognitive concerns and enables the collection of a standardized minimum dataset-including cognitive, functional, demographic, and care-related information-across diverse populations. The dementia registry can serve as infrastructure to evaluate dementia-related innovations (including digital cognitive-screening tools) in real-world settings and support evidence generation to inform service planning and policy development, while strengthening earlier connection to supports and more coordinated care pathways for individuals and their care partners. This approach is aligned with emerging regulatory emphasis on real-world evidence (U.S. Food and Drug Administration, 2018; European Medicines Agency, 2021; Health Canada, 2019) and with Ontario's Improving Dementia Care in Ontario Act (2024), illustrating how co-designed, frontline-led approaches may bridge community needs and health system decision-making. Together, this work lays the groundwork for a scalable framework to advance equitable, person-centred dementia care in Ontario and beyond.

Indexed as

co-creationcognitive assessmentcommunitydementiaevaluationimplementationneurotechnologyregistry

Identifiers

PMID42382181
PMCPMC13314852

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.