Evidence map›Paper›PMID 42379991›Full record

ArticleAnnals of family medicine2026

Advancing Family Medicine Through Dyadic Electronic Medical Record Linkage in Dementia Care.

Annie Robitaille, Kristina M Kokorelias, Kris Aubrey-Bassler, David Barber, Stephanie Garies, Linda Garcia, Mathew Grandy, Keri Harvey, Dewdunee Himasara Marasinghe, Leanne Kosowan and 11 more

Abstract read
In one paragraph

Article in Annals of family medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Annie RobitailleCentre of Excellence in Frailty-Informed Care, Perley Health, Ottawa, Ontario, Canada (Robitaille, Kokorelias) arobitai@uottawa.ca.
Kristina M KokoreliasCentre of Excellence in Frailty-Informed Care, Perley Health, Ottawa, Ontario, Canada (Robitaille, Kokorelias).
Kris Aubrey-BasslerPrimary Healthcare Research Unit, Memorial University of Newfoundland and Labrador, St. John's, Newfoundland, Canada (Aubrey-Bassler, Sharior).
David BarberDepartment of Family Medicine, University of Calgary, Calgary, Alberta, Canada (Barber, Garies, Marasingbe, Drummond).
Stephanie GariesDepartment of Family Medicine, University of Calgary, Calgary, Alberta, Canada (Barber, Garies, Marasingbe, Drummond).
Linda GarciaLife Institute, University of Ottawa, Ottawa, Ontario, Canada (Garcia).
Mathew GrandyDepartment of Family Medicine, Dalhousie University, Halifax, Nova Scotia, Canada (Grandy, Harvey).
Keri HarveyDepartment of Family Medicine, Dalhousie University, Halifax, Nova Scotia, Canada (Grandy, Harvey).
Dewdunee Himasara MarasingheDepartment of Family Medicine, University of Calgary, Calgary, Alberta, Canada (Barber, Garies, Marasingbe, Drummond).
Leanne KosowanDepartment of Family Medicine, University of Manitoba, Winnipeg, Manitoba, Canada (Kosowan, Singer).
Lynn McClearyDepartment of Nursing at Brock University, St. Catharines, Ontario, Canada (McCleary).
Rachael MorkemDepartment of Family Medicine, Queen's University, Kingston, Ontario, Canada (Morkem, Theal, Williamson).
Kelly A PilatoDepartment of Health Sciences, Brock University, St. Catharines, Ontario, Canada (Pilato).
Fazle ShariorPrimary Healthcare Research Unit, Memorial University of Newfoundland and Labrador, St. John's, Newfoundland, Canada (Aubrey-Bassler, Sharior).
Alex SingerDepartment of Family Medicine, University of Manitoba, Winnipeg, Manitoba, Canada (Kosowan, Singer).
Matt TaylorDepartment of Family Medicine, University of Alberta, Edmonton, Alberta, Canada (Taylor).
Rebecca ThealDepartment of Family Medicine, Queen's University, Kingston, Ontario, Canada (Morkem, Theal, Williamson).
Mary Helmer-SmithCentre for Health Services and Policy Research and School of Nursing, University of British Columbia, Vancouver, British Columbia, Canada (Helmer-Smith, Wong).
Sabrina WongCentre for Health Services and Policy Research and School of Nursing, University of British Columbia, Vancouver, British Columbia, Canada (Helmer-Smith, Wong).
Tyler WilliamsonDepartment of Family Medicine, Queen's University, Kingston, Ontario, Canada (Morkem, Theal, Williamson).
Neil DrummondDepartment of Family Medicine, University of Calgary, Calgary, Alberta, Canada (Barber, Garies, Marasingbe, Drummond).

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Family physicians are well-positioned to support both persons living with dementia (PLWD) and their caregivers. However, current electronic medical record (EMR) systems do not capture the relational and interdependent nature of dementia care. Dyadic data, linking the records of persons living with dementia (PLWD) and their caregivers, could support more integrated, proactive, and personalized care. While there is growing interest in leveraging EMRs for this purpose, few systems enable routine dyadic linkage, limiting clinical utility and research capacity.This report describes the current state of dyadic EMR data linkage in Canada, drawing on a pilot study using the Canadian Primary Care Sentinel Surveillance Network (CPCSSN). We examined methods for identifying PLWD-caregiver dyads in primary care settings, including manual identification and algorithmic approaches using shared contact information. Both methods were feasible, but each faced challenges related to EMR compatibility, privacy regulations, and consent processes. The study highlights how CPCSSN infrastructure can be used to create de-identified, longitudinal data sets for research and surveillance, while also identifying critical gaps that limit clinical application.Our findings demonstrate that while EMRs offer a promising platform for linking dyadic data, system-level changes are needed to fully integrate caregiver information into routine care. This includes standardized fields, clearer privacy guidelines, and cross-sector data harmonization. Dyadic EMR linkage has the potential to inform research, improve quality of care, and guide policy development. Future efforts must balance innovation with feasibility and privacy, ensuring caregiver roles are visible and valued within primary care systems.Abstract also available in: عربي (Arabic); Deutsch (German); Español (Spanish); Francais (French); हिन्दी (Hindi); Indonesia (Indonesian); (Chinese); (Japanese); Portugues (Portuguese).

Indexed as

CaregiversDementiaElectronic Health RecordsFamily PracticeMedical Record LinkageCanadaHumansPilot ProjectsPrimary Health Carecaregivingdementiafamily medicine

Identifiers

PMID42379991
PMCPMC13405897

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.