Evidence map›Paper›PMID 42378626›Full record

ArticleJMIR mental health2026

Governing Ethical Tensions in Youth Digital Mental Health Research.

Kristin Berre Ørjasæter, Stefan Rennick-Egglestone, Kristin Øksendal Børresen, Cathrine Fredriksen Moe, Anna Leiler, Helga DI Sigurdardóttir, Victor Manuel Pèrez Colado, Malle Vogelsang, Teddy Nambazira, Jone Trovåg and 5 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JMIR mental health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Kristin Berre ØrjasæterDivision of Health and Community Participation, Faculty of Nursing and Health Sciences, Nord University, Finn Christiansgt 1, Namsos, Trøndelag, 7801, Norway, 47 74212337.ORCID http://orcid.org/0000-0001-6873-0876
Stefan Rennick-EgglestoneRecovery Research Team, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.ORCID http://orcid.org/0000-0003-4187-011X
Kristin Øksendal BørresenDivision Health and Community Participation, Faculty of Nursing and Health Science, Nord University, Bodø, Nordland, Norway.ORCID http://orcid.org/0009-0004-9278-833X
Cathrine Fredriksen MoeDivision Health and Community Participation, Faculty of Nursing and Health Science, Nord University, Bodø, Nordland, Norway.ORCID http://orcid.org/0000-0001-9520-4011
Anna LeilerDivision of Health and Community Participation, Faculty of Nursing and Health Sciences, Nord University, Levanger, Trøndelag, Norway.ORCID http://orcid.org/0000-0003-1736-8939
Helga DI SigurdardóttirDivision of Games and Entertainment Technology, Faculty of Social Sciences, Nord University, Levanger, Trøndelag, Norway.ORCID http://orcid.org/0000-0002-5440-3230
Victor Manuel Pèrez ColadoDivision of Games and Entertainment Technology, Faculty of Social Sciences, Nord University, Levanger, Trøndelag, Norway.ORCID http://orcid.org/0000-0001-9778-8129
Malle VogelsangDivision of Health and Community Participation, Faculty of Nursing and Health Sciences, Nord University, Levanger, Trøndelag, Norway.ORCID http://orcid.org/0009-0007-6892-8533
Teddy NambaziraDivision of Health and Community Participation, Faculty of Nursing and Health Sciences, Nord University, Levanger, Trøndelag, Norway.ORCID http://orcid.org/0009-0005-6565-929X
Jone TrovågMental Health Youth Organization, Oslo, Norway.ORCID http://orcid.org/0009-0007-3392-4970
Victor ValderauneDivision Health and Welfare, Åfjord Municipality, Åfjord, Norway.ORCID http://orcid.org/0009-0007-5913-7633
Ingunn SkjesolDivision of Health and Community Participation, Faculty of Nursing and Health Sciences, Nord University, Finn Christiansgt 1, Namsos, Trøndelag, 7801, Norway, 47 74212337.ORCID http://orcid.org/0000-0003-4989-2233
Fiona NgRecovery Research Team, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.ORCID http://orcid.org/0000-0002-8656-8830
Ottar NessDepartment of Education and Lifelong Learning, Faculty of Social and Educational Sciences, Norwegian University of Science and Technology, Trondheim, Norway.ORCID http://orcid.org/0000-0001-7322-2227
Mike SladeDivision of Health and Community Participation, Faculty of Nursing and Health Sciences, Nord University, Finn Christiansgt 1, Namsos, Trøndelag, 7801, Norway, 47 74212337.ORCID http://orcid.org/0000-0001-7020-3434

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Unlabelled: As mental health research increasingly aims to generate societal impact, researchers operate at the intersection of innovation and ethical responsibility. Drawing on experiences from the cocreated NEON Young Norway Study on youth recovery narratives, this viewpoint identifies four ethical tensions that arise from the existing governance frameworks in youth digital mental health research: (1) balancing safeguarding against harm with youth participation, (2) protecting privacy without undermining authentic storytelling, (3) governing unpredictable outcomes of cocreated research, and (4) meeting ethical and legal standards while ensuring youth-friendly communication. These tensions highlight limitations in mental health research that adopts participatory and digital approaches, as this often struggles to accommodate iterative designs, narrative data, and cross-sector collaboration. We argue that responsible youth mental health research requires ethics to be understood as a dynamic, participatory practice that supports safe and equitable inclusion, rather than having a focus on risk prevention. Ethical governance, therefore, needs to evolve toward proportionate, context-sensitive approaches that can enable innovation while protecting young people's rights, agency, and voices.

Indexed as

Ethics, ResearchMental HealthAdolescentDigital HealthDigital MediaEthical DilemmasHumansNorwaycocreationconsentdata governancedigital ethicsdigital healthinnovationparticipatory researchrecovery narrativesresearch ethicsyouth

Identifiers

PMID42378626
PMCPMC13318201

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.