ArticleHealth expectations : an international journal of public participation in health care and health policy2026
Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis.
Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Views on mental health research in the context of schizophrenia: perspectives of peer support workers and researchers with lived experience - a qualitative study.Research involvement and engagement · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundPartnering with people with lived experience of the mental health or substance use spectrum and caregivers is a growing priority in research. There is an emerging meta-research literature on the science of engagement, but this has not been synthesised.
objectiveThis scoping review synthesises the meta-research on the science of lived experience and caregiver engagement in mental health and substance use health research.
methodWe conducted systematic searches in PsycInfo (Ovid), MEDLINE (Ovid), CINAHL (EBSCO), and Web of Science. Articles were eligible if they presented original meta-research on lived experience/caregiver engagement in mental health and substance use health research in the past 10 years. Titles and abstracts, then full texts, were reviewed by two independent reviewers. Data were extracted into a spreadsheet and synthesised qualitatively.
resultsFifty-seven articles were included. The meta-research has aimed to understand experiences or needs in engagement contexts, describe or evaluate engagement groups, or develop or evaluate tools and resources to support engagement. The literature reports on positive experiences and challenges, describes approaches and new tools, and highlights opportunities for increased engagement. Papers point to the importance of improving engagement processes, structural supports and logistics.
conclusionsA growing body of meta-research on the science of lived experience and caregiver engagement in mental health and substance use health research remains largely descriptive in nature, rather than analytical. Research teams are encouraged to seek solutions to identified challenges and key areas of development in engagement processes, structural supports and logistics. Addressing these aspects will further advance the meta-research evidence base. LIVED EXPERIENCE: This review was conducted together with people with lived experience, including co-authorship.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.