Evidence map›Paper›PMID 42373775›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026

A multi‑country evaluation of healthcare professionals' experiences with the PanCareFollowUp training package to implement person-centred care in childhood cancer survivorship care: A PanCareFollowUp study.

Jacqueline J Loonen, Eline Bouwman, Adriaan Penson, Cecilia Follin, Anne Uyttebroeck, Dionne Breij, Katerina Kepakova, Sofie Prikken, Lars Hjorth, Jeanette F Winther and 12 more

Abstract readMulticenter Study
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors.

Jacqueline J LoonenCenter of Expertise for Cancer Survivorship, Radboud University Medical Center, Nijmegen, the Netherlands.ORCID http://orcid.org/0000-0002-9963-8367
Eline BouwmanIQ Health, Radboud University Medical Center, Nijmegen, the Netherlands. eline.bouwman@radboudumc.nl.ORCID http://orcid.org/0000-0002-9149-9745
Adriaan PensonSociety for Personalized Healthcare, Nijmegen, the Netherlands.ORCID http://orcid.org/0000-0001-7558-1637
Cecilia FollinDepartment of Clinical Sciences Lund, Oncology, Lund University, Skåne University Hospital, Lund, Sweden.ORCID http://orcid.org/0000-0003-2133-7967
Anne UyttebroeckDepartment of Pediatric Hematology and Oncology, University Hospitals Leuven, Leuven, Belgium.ORCID http://orcid.org/0000-0001-5644-424X
Dionne BreijCenter of Expertise for Cancer Survivorship, Radboud University Medical Center, Nijmegen, the Netherlands.ORCID http://orcid.org/0009-0003-4066-6675
Katerina KepakovaInternational Clinical Research Center (FNUSA-ICRC), St. Anne's University Hospital, Masaryk University, Brno, Czech Republic.ORCID http://orcid.org/0000-0002-7508-7193
Sofie PrikkenDepartment of Pediatric Hematology and Oncology, University Hospitals Leuven, Leuven, Belgium.ORCID http://orcid.org/0000-0001-5317-9022
Lars HjorthDepartment of Clinical Sciences Lund, Pediatrics, Lund University, Skåne University Hospital, Lund, Sweden.ORCID http://orcid.org/0000-0002-8302-7174
Jeanette F WintherChildhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.ORCID http://orcid.org/0000-0002-3440-5108
Helena J H van der PalPrincess Máxima Center for Pediatric Oncology, Utrecht, the Netherlands.ORCID http://orcid.org/0000-0003-2253-2115
Carina SchneiderChildhood Cancer International - Europe, Vienna, Austria.ORCID http://orcid.org/0000-0003-3480-8705
Anita KienesbergerChildhood Cancer International - Europe, Vienna, Austria.
Hannah GsellChildhood Cancer International - Europe, Vienna, Austria.ORCID http://orcid.org/0009-0004-8529-549X
Gisela MichelFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.ORCID http://orcid.org/0000-0002-9589-0928
Saskia M F PluijmPrincess Máxima Center for Pediatric Oncology, Utrecht, the Netherlands.ORCID http://orcid.org/0000-0002-4459-7799
Roderick SkinnerGreat North Children's Hospital, Newcastle upon Tyne, UK.ORCID http://orcid.org/0000-0002-1162-675X
Leontien C M KremerPrincess Máxima Center for Pediatric Oncology, Utrecht, the Netherlands.ORCID http://orcid.org/0000-0001-7422-3248
Monica MuracaDivision of Pediatric Hematology and Oncology, IRCCS Istituto Giannina Gaslini, DOPO Clinic, Genoa, Italy.ORCID http://orcid.org/0000-0001-5259-7046
Tomas KepakInternational Clinical Research Center (FNUSA-ICRC), St. Anne's University Hospital, Masaryk University, Brno, Czech Republic.ORCID http://orcid.org/0000-0002-1449-5273
Rosella P M G HermensIQ Health, Radboud University Medical Center, Nijmegen, the Netherlands.ORCID http://orcid.org/0000-0001-7624-7120
PanCareFollowUp Consortium

Funding

Horizon 2020 824982
6 · The paper itself

Abstract

purposeSurvivors of childhood, adolescent, and young adult (CAYA) cancer face lifelong risks of treatment-related late effects, emphasizing the need for innovative, person-centred survivorship care. The PanCareFollowUp (PCFU) Care intervention, based on person-centred care (PCC), prioritizes survivors' values and needs. This paper describes the evaluation of experiences of healthcare professionals' (HCPs) and supporting staff's experiences with the training package that was developed for implementation of PCC in the PCFU Care.

methodsTo support PCC delivery, a training package, including a training presentation with voice-over and a workshop, was developed. Healthcare professionals (HCPs) and supporting staff from four European survivorship clinics evaluated the training package through questionnaires measuring readiness to apply PCC, knowledge, confidence, perceived utility, and tool-related experiences.

resultsEighteen HCPs evaluated the training presentation. Readiness to apply PCC increased from 68% pre-training to 89% post-training, while confidence declined from 78% to 68%. Most participants reported improved knowledge, with 94% indicating at least some increase. Frameworks such as Ekman's pillars, the seven steps for a PCC consultation, and shared decision-making questions were rated highly useful. Twenty-eight HCPs evaluated the workshop; 82% found it useful and 82% reported an overall favourable impression. Participants valued open discussion, multidisciplinary perspectives, and survivor involvement. The workshop's short duration and more broadly, limited time, staff shortages, and digital infrastructure were identified as barriers to PCC implementation.

conclusionThis multi-country evaluation shows that even brief PCC training can enhance HCPs' readiness to deliver person-centred survivorship care. The findings highlight both the potential of concise educational interventions and the importance of delivery format and organizational context for the sustainable implementation of PCC across survivorship care settings.

Indexed as

Cancer SurvivorsHealth PersonnelNeoplasmsPatient-Centered CareAdolescentAdultAttitude of Health PersonnelChildEuropeFemaleHumansMaleSurveys and QuestionnairesSurvivorshipYoung AdultCancer Survivorship CareImplementationPanCareFollowUpPerson-Centred Care

Identifiers

PMID42373775
PMCPMC13314809

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.