Evidence map›Paper›PMID 42372787›Full record

ArticleApplied clinical informatics2026

From Pandemic Response to Kill the Clipboard: Patient-Controlled Sharing of Health Data Using International Patient Summary (IPS) and QR codes.

John D D'Amore, Estar Rani Vallapu, Lipika Samal, Bryant T Karras, William B Lober

Abstract read
In one paragraph

Article in Applied clinical informatics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

John D D'AmoreBoston University Metropolitan College, Department of Computer Sciences, Massachusetts, United States, Boston.ORCID 0000-0001-8251-2955
Estar Rani VallapuThe Perio Studio Associates PC, Massachusetts, United States, Boston.
Lipika SamalBrigham and Women's Hospital, Department of Medicine, Massachusetts, United States, Boston.
Bryant T KarrasWashington State, Department of Health, Washington, United States, Tumwater.
William B LoberUniversity of Washington, Department of Health Informatics and Global Health, Washington, United States, Seattle.

Funding

Electronic Tools to Increase Recognition and Improve Primary Care Management for Hypertension in Chronic Kidney Disease: A Multi-site Randomized Clinical TrialR01DK116898 · NIDDK · BRIGHAM AND WOMEN'S HOSPITAL · PI Saul B. Blecker, David Alan Feldstein · 2018 to 2026
$6.0M
Multiple Chronic COnditions: MultiPle dAta SouRcEs (MC COMPARE)R01AG082931 · NIA · OREGON HEALTH & SCIENCE UNIVERSITY · PI DORR, DAVID A., SAMAL, LIPIKA · 2023 to 2025
$3.7M
AHRQ HHS R01 HS028007AHRQ HHS R01HS28007NIA NIH HHS R01 AG082931NIA NIH HHS R01AG082931NIDDK NIH HHS 2R01DK116898-06NIDDK NIH HHS R01 DK116898Washington State Department of Health HED-30923
6 · The paper itself

Abstract

Background: Despite advances in interoperability, patient-supplied medical histories commonly use paper-based forms. Dissatisfaction with this inefficiency has led to the "Kill the Clipboard" initiative from the Centers for Medicare & Medicaid Services to advance digital alternatives. During the coronavirus disease 2019 (COVID-19) pandemic, patient-controlled vaccination record sharing demonstrated that Quick Response (QR) codes and digital data standards provide an effective option. Building on this, several nations are using three standards to securely view and exchange medical data: Fast Healthcare Interoperability Resources, the International Patient Summary, and SMART Health Links. Objectives: This case report explores the use of QR codes and medical data standards in patient-mediated workflows to share medical histories, describing implementation experiences from four such implementations. Methods: We describe standards and developer community experience with global initiatives and implementations across the United States, Canada, and the Hajj pilgrimage, which all support the use of QR codes in patient-mediated data exchange. Results: We report on technical readiness, patient adoption, and reported improvements to emergency preparedness using QR codes to share patient summaries. Conclusion: Advancing patient-mediated exchange with these technologies aligns with initiatives to "Kill the Clipboard." Preliminary evidence suggests this novel approach can better inform care. These four case studies demonstrate the viability of this approach and the lessons learned from this digital transition.

Indexed as

COVID-19Information DisseminationPandemicsHumans

Identifiers

PMID42372787
PMCPMC13354518

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.