Evidence map›Paper›PMID 42370289›Full record

ArticleResearch square2026

Perceptions of end-of-life care quality among bereaved closest contacts of community-dwelling older Australians: a cross-sectional survey of the ASPREE cohort.

Zoe M Keon-Cohen, Cammie Tran, Daryl Jones, Pamela Y L Wong, Catherine Robb, Jane Banaszak-Holl, John J McNeil

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In one paragraph

Article in Research square, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Zoe M Keon-CohenMonash University.
Cammie TranMonash University.
Daryl JonesMonash University.
Pamela Y L WongMonash University.
Catherine RobbMonash University.
Jane Banaszak-HollUniversity of Alabama at Birmingham.
John J McNeilMonash University.

Funding

ASPirin in Reducing Events in the ElderlyU01AG029824 · NIA · HENNEPIN HEALTHCARE RESEARCH INSTITUTE · PI MCNEIL, JOHN JAMES, MURRAY, ANNE M · 2009 to 2018
$64.6M
NIA NIH HHS U01 AG029824
6 · The paper itself

Abstract

Background: High-quality end-of-life care (EOLC) is a recognised health and human-rights priority, yet Australian evidence largely derives from administrative data and cancer-specific, facility-based samples. Little is known about the quality of EOLC experienced by community-dwelling older adults across the full range of care settings. We assessed perceived EOLC quality and its socio-demographic and clinical correlates in this group. Methods: We conducted a cross-sectional survey of the closest contacts of deceased participants in the ASPirin in Reducing Events in the Elderly (ASPREE) study, a cohort of initially healthy, community-dwelling adults aged 70 years and older. The 32-item instrument, adapted from the UK Views of Informal Carers - Evaluation of Services, Short Form (VOICES-SF) and refined through consumer and expert review, captured overall EOLC quality and five domains (pain control, symptom control, communication, emotional peace, and support) during the final month of life. Responses were linked to prospectively collected ASPREE data. Associations were examined using Pearson chi-square or Fisher exact tests. Results: Of 432 invitations, 342 responded (79% response rate) and 341 were analysed. Overall EOLC in the last month of life was rated very good or excellent by 84% of respondents and poor or very poor by 6%. Ratings were similarly high for pain control (80%), symptom control (84%), communication (79%), emotional peace (79%), and support (81%). Overall EOLC quality did not differ significantly by age, sex, rurality, socio-economic position (IRSAD), education, place of death, cancer status, illness trajectory, or advance care planning documentation. Domain-specific differences were limited: closest contacts of younger decedents more often reported poorer communication (p = 0.009), female decedents less often achieved a sense of peace (p = 0.01), and decedents with ≤ 12 years of education were rated as better supported (p = 0.05). Conclusions: In this community-dwelling cohort of older Australians, perceived EOLC quality was uniformly high and showed no socio-economic, geographic, or diagnostic gradient, indicating that equitable, high-quality EOLC is achievable in a well-resourced population. These data provide a community-based benchmark against which disparities in less advantaged groups can be measured, and identify communication with younger families as a target for improvement.

Indexed as

Advance care planningAgedAustraliaBereavementEnd-of-life carePatient-reported outcomeQuality of health careTerminal careVOICES survey

Identifiers

PMID42370289
PMCPMC13308383

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.