Evidence map›Paper›PMID 42370101›Full record

ReviewEULAR rheumatology open2026

Measuring what matters: challenges in pain assessment among people with dementia and rheumatic and musculoskeletal diseases.

Shennah Austen, Daisy J A Janssen, Annelies Boonen, Astrid van Tubergen, Marloes van Onna

Abstract readReview
In one paragraph

Review in EULAR rheumatology open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Shennah AustenDepartment of Health Services Research, CAPHRI Care and Public Health Research Institute, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands.
Daisy J A JanssenDepartment of Health Services Research, CAPHRI Care and Public Health Research Institute, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands.
Annelies BoonenDepartment of Rheumatology, Maastricht University Medical Center, Maastricht, The Netherlands.
Astrid van TubergenDepartment of Rheumatology, Maastricht University Medical Center, Maastricht, The Netherlands.
Marloes van OnnaDepartment of Rheumatology, Maastricht University Medical Center, Maastricht, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Population ageing will lead to a growing number of people living with both dementia and rheumatic and musculoskeletal diseases (RMDs). Current clinical practice and research methods in rheumatology are, however, largely built around people who can reliably communicate symptoms and report pain. Dementia fundamentally alters how RMDs present, as joint pain may manifest through behavioural change, and treatment response may not be captured by standard assessments such as disease activity scores. Observational pain scales used in geriatric care, such as the Pain Assessment Checklist for Seniors with Limited Ability to Communicate, were developed for routine clinical observation. These tools are, however, not specific to RMD-related symptoms. We argue that pragmatic study designs incorporating outcomes collected in daily living situations, such as mobility and qualitative input from informal caregivers and nursing staff, are needed to better detect treatment effects in people with dementia and RMDs.

Identifiers

PMID42370101
PMCPMC13292366

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.