ArticleEULAR rheumatology open2025
Hidden disabilities in patients with autoimmune rheumatic disease: an invisible barrier to daily functioning and healthcare accessibility.
Article in EULAR rheumatology open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
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Corrections and comments
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Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objectives: Patients with autoimmune rheumatic disease (ARD) frequently experience invisible yet disabling symptoms, including chronic pain, fatigue, mobility issues, sensory impairments, and cognitive dysfunction. These hidden disabilities can hinder daily functioning, particularly in accessing healthcare via public transportation. This study explored real-life experiences of patients with ARD, focusing on how their condition affects daily life and perceptions of public transportation accessibility for hospital visits in Jakarta. Methods: A qualitative study using focus group discussions was conducted in May 2024 with 14 patients with ARD aged 18 to 60 years who regularly used public transportation in Jakarta. All participants had nonvisible disabilities. Individuals using mobility aids, holding disability identifiers, or pregnant were excluded. Results: The primary theme focused on participants' perceptions of their disease and treatment, highlighting the impact on daily life, unpleasant hospital visit experiences, and coping attitudes. The second theme focused on accessibility of public transportation, emphasising issues with difficulties in using public transportation, infrastructure, and personnel awareness. Third, participants discussed the importance of identifiers for hidden disabilities, including methods for identification, disability groups categorisation, and attitudes towards advocacy efforts for hidden disability. Conclusions: Hidden disabilities profoundly affect patients' with ARD daily lives, particularly their ability to navigate public transportation. Patients with ARD were not regarded as a priority group in public transportation, which hindered their access to healthcare facilities. Introducing identifiers for individuals with hidden disabilities can enhance public awareness and improve accessibility, supporting better traveling experiences in public transportation for this group.
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.