Evidence map›Paper›PMID 42367829›Full record

ArticleGlobal heart2026

Co-Developing Strategies for Patient Engagement in Decentralized Rheumatic Heart Disease Care: Lessons from Northern Uganda.

Jafesi Pulle, Lisa Vaughn, Isaac Otim, Doreen Nakagaayi, Michaela Pardo, Sarah deLoizaga, McCall Miller, Joselyn Rwebembera, Emmy Okello, Nelson K Sewankambo and 4 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Global heart, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Jafesi PulleRheumatic Heart Disease Research Collaborative, Kampala, Uganda.ORCID 0000-0001-7955-3481
Lisa VaughnDivision of Emergency Medicine, Cincinnati Children's Hospital Medical Center, Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA.ORCID 0000-0002-4348-651X
Isaac OtimRheumatic Heart Disease Research Collaborative, Kampala, Uganda.ORCID 0000-0003-0524-0364
Doreen NakagaayiRheumatic Heart Disease Research Collaborative, Kampala, Uganda.ORCID 0000-0003-4010-9951
Michaela PardoDepartment of Global Health, University of Washington, Seattle, Washington, USA.ORCID 0009-0000-3819-8567
Sarah deLoizagaCollege of Medicine, University of Cincinnati, Cincinnati, Ohio, USA.ORCID 0000-0002-1001-273X
McCall MillerCollege of Medicine, University of Cincinnati, Cincinnati, Ohio, USA.ORCID 0009-0004-4117-934X
Joselyn RwebemberaRheumatic Heart Disease Research Collaborative, Kampala, Uganda.ORCID 0000-0001-8453-818X
Emmy OkelloRheumatic Heart Disease Research Collaborative, Kampala, Uganda.ORCID 0000-0002-6109-0092
Nelson K SewankamboDepartment of Internal Medicine, Makerere University College of Health Sciences, Kampala, Uganda.ORCID 0000-0001-9362-053X
Kristen DanforthDepartment of Global Health, University of Washington, Seattle, Washington, USA.ORCID 0000-0002-7409-6661
Andrea BeatonCollege of Medicine, University of Cincinnati, Cincinnati, Ohio, USA.ORCID 0000-0002-4963-355X
David WatkinsDepartment of Global Health, University of Washington, Seattle, Washington, USA.ORCID 0000-0001-6341-9595
James KayimaUganda Heart Institute, Kampala, Uganda.ORCID 0000-0002-4676-7819

Funding

Accelerating Delivery of rheumatic heart disease preventive iNterventions in Uganda (ADUNU)R01HL164615 · NHLBI · CINCINNATI CHILDRENS HOSP MED CTR · PI Andrea Zawacki Beaton, David A Watkins · 2022 to 2026
$3.0M
Reducing the Impact of Rheumatic Heart Disease across the Life Span: The Impact ProgramD43TW012255 · FIC · MAKERERE UNIVERSITY COLLEGE OF HEALTH SCIENCES · PI Andrea Zawacki Beaton, Emmy Okello · 2022 to 2026
$1.1M
FIC NIH HHS D43 TW012255NHLBI NIH HHS R01 HL164615
6 · The paper itself

Abstract

Rheumatic heart disease (RHD) requires long-term secondary antibiotic prophylaxis to prevent disease progression, yet sustained patient engagement remains challenging in many low- and middle-income countries. Within Uganda's first integrated decentralized RHD control program, Accelerating Delivery of Rheumatic Heart Disease Preventive Services in Uganda (ADUNU), we applied a human-centered design (HCD) approach to co-develop strategies for improving engagement in care. Using two Group Level Assessment sessions (with n = 43 stakeholders) and three design focus group discussions (n = 23 stakeholders), participants identified and prioritized feasible implementation strategies. Strategies were synthesized into four domains: community integrated follow-up, structured patient health education and counselling, provider capacity and service delivery improvement, and strengthening stock planning for medicine availability. These co-developed strategies directly address barriers related to missed appointments, limited understanding of RHD, provider-patient interactions, and medicine stockouts within decentralized primary care settings. This participatory approach generated contextually grounded strategies, ready for prospective testing within decentralized RHD programs.

Indexed as

Patient ParticipationPrimary Health CareRheumatic Heart DiseaseHumansUgandaADUNUco-designhuman-centered designrheumatic heart diseaseUganda

Identifiers

PMID42367829
PMCPMC13308519

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.