Evidence map›Paper›PMID 42363305›Full record

ArticleSystematic reviews2026

Sexual and reproductive health information needs of young adults with chronic conditions: a scoping review protocol.

Salima Meherali, Yared Asmare Aynalem, Saba Nisa, Claire Tellier, Megan Kennedy, Lisa Hartling, Shannon Scott, Anam Shahil-Feroz, Ashley Vandermorris, Amanda Steiman and 7 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Systematic reviews, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Salima MeheraliFaculty of Nursing, University of Alberta, Edmonton, AB, Canada. meherali@ualberta.ca.
Yared Asmare AynalemFaculty of Nursing, University of Alberta, Edmonton, AB, Canada.
Saba NisaFaculty of Nursing, University of Alberta, Edmonton, AB, Canada.
Claire TellierFaculty of Nursing, University of Alberta, Edmonton, AB, Canada.
Megan KennedyJohn W. Scott Health Sciences Library, University of Alberta, Edmonton, AB, Canada.
Lisa HartlingDepartment of Pediatrics, University of Alberta, Edmonton, AB, Canada.
Shannon ScottFaculty of Nursing, University of Alberta, Edmonton, AB, Canada.
Anam Shahil-FerozSchulich School of Medicine & Dentistry, Western University, London, ON, Canada.
Ashley VandermorrisDepartment of Pediatrics, The Hospital for Sick Children (SickKids), Toronto, ON, Canada.
Amanda SteimanSinai Health System, Toronto, ON, Canada.
Janani KassiriDivision of Pediatric Neurology, Faculty of Medicine & Dentistry - Pediatrics Dept, University of Alberta, Edmonton, AB, Canada.
Deborah LevyDepartment of Pediatrics, The Hospital for Sick Children (SickKids), Toronto, ON, Canada.
Kambiz NoroziDepartment of Pediatrics, Pediatric Cardiology, Western University, London, ON, Canada.
Laura KirkpatrickUPMC Children's Hospital/University of Pittsburgh, Pittsburgh, PA, USA.
Wendy V NormanSchool of Population & Public Health and Dept of Obstetrics & Gynecology, University of British Columbia, Vancouver, BC, Canada.
Michael KhouryDepartment of Pediatrics, University of Alberta, Edmonton, AB, Canada.
Simone LebeufFaculty of Medicine & Dentistry - Pediatrics Dept, Edmonton, AB, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveThis scoping review aims to identify, map, and synthesize evidence on the sexual and reproductive health (SRH) information needs of youth 15-24 years living with epilepsy, congenital heart disease (CHD), or systemic lupus erythematosus (SLE) in the USA and Canada, and identify barriers and facilitators to access to SRH information and services.

introductionYouth and young adults with chronic health conditions face elevated and condition-specific reproductive risks. Among youth with epilepsy, interactions between seizures, antiseizure medications, hormones, and hormonal contraceptives increase the risk of unintended pregnancy. For youth with congenital heart disease, a substantial proportion of pregnancies are associated with cardiac complications, and contraceptive counseling is often delayed or inconsistently delivered. In systemic lupus erythematosus, limited contraceptive options and teratogenic therapies further heighten reproductive risk, with active disease associated with significantly increased risks of preterm birth and pre-eclampsia. Despite these well-documented risks, youth with chronic conditions frequently report unmet SRH information needs related to contraception, medication safety, fertility, and pregnancy planning. Evidence remains fragmented across specialties and largely focused on pregnancy outcomes rather than youth-centered informational needs and access to services. Our preliminary search did not identify a comprehensive scoping review that maps sexual and reproductive health (SRH) information needs, barriers, and facilitators across these three chronic conditions among young people in North America. Given the anticipated heterogeneity in study designs, populations, and outcomes, a scoping review is appropriate for characterizing the breadth and nature of the evidence base. INCLUSION CRITERIA: Eligible sources will include empirical studies from the USA and Canada involving youth aged 15-24 years diagnosed with epilepsy, CHD, or SLE. Studies must address SRH information needs and/or barriers and facilitators to accessing SRH information or services. Youth-reported needs will be distinguished from caregiver or provider perspectives, which will be included only when directly relevant to youth experiences. All primary qualitative, quantitative, and mixed-methods designs, as well as empirical grey literature, will be considered.

methodsThis review will follow Joanna Briggs Institute (JBI) methodology for scoping reviews and will be reported in accordance with the PRISMA-ScR guidelines. A three-step search strategy will be implemented across MEDLINE, Embase, CINAHL, PsycINFO, Scopus, Web of Science, CENTRAL, and targeted grey literature sources from the inception of each database to the final search date. Two reviewers will independently screen records and extract data using a piloted standardized tool. Results will be synthesized descriptively and analyzed using manifest-level content analysis to categorize SRH information needs, barriers, and facilitators. Findings will be mapped across socio-ecological levels and developmental stages (15-19 and 20-24 years), where data permit. SYSTEMATIC REVIEW REGISTRATION: This protocol is registered with the Open Science Framework ( https://doi.org/10.17605/OSF.IO/5SWTY ).

Indexed as

EpilepsyLupus Erythematosus, SystemicReproductive HealthSexual HealthAdolescentCanadaChronic DiseaseFemaleHumansPregnancyScoping Reviews as TopicUnited StatesYoung AdultCongenital heart diseaseEpilepsyScoping reviewSexual and reproductive healthSystemic lupus erythematosusYouth

Identifiers

PMID42363305
PMCPMC13573326

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.