Evidence map›Paper›PMID 42359101›Full record

ArticleFrontiers in dementia2026

How do US states define person-centered and family-involved care in assisted living regulations.

Paula Carder, Lindsey Smith, Jennifer N Bunker, Cassandra L Hua, Erh-Chi Hsu, Isabelle Boun, Olivia M Ainsworth, Kali S Thomas, Eric Jutkowitz

Abstract read
In one paragraph

Article in Frontiers in dementia, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Paula CarderInstitute on Aging, Portland State University, Portland, OR, United States.
Lindsey SmithOregon Health and Science University Portland State University School of Public Health, Portland, OR, United States.
Jennifer N BunkerJohns Hopkins University School of Nursing, Baltimore, MD, United States.
Cassandra L HuaZuckerberg College of Health Sciences, University of Massachusetts Lowell, Lowell, MA, United States.
Erh-Chi HsuJohns Hopkins University School of Nursing, Baltimore, MD, United States.
Isabelle BounSchool of Public Health, Brown University, Brown University, Providence, RI, United States.
Olivia M AinsworthOregon Health and Science University Portland State University School of Public Health, Portland, OR, United States.
Kali S ThomasJohns Hopkins University School of Nursing, Baltimore, MD, United States.
Eric JutkowitzUniversity of Minnesota Twin Cities School of Public Health, Minneapolis, MN, United States.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: A large share of assisted living (AL) residents have a diagnosis of dementia or cognitive impairment, and these individuals can benefit from person-centered care and family-involved care. This study examines whether and how states' AL licenses address these topics. Methods: This research analyzed a national database of 249 unique licensing requirements that govern 35,602 ALs in all states and associated regulations, including those that govern memory care (MC) services. We reviewed each regulation for the presence of person-centered or family involved care and then used content analysis of license requirements with at least one relevant policy to identify key categories and regulatory specificity. Results: A larger share of AL with licenses that govern MC services are covered by person-centered care policies (44%) and family-involved policies (62%), compared to AL without MC-specific requirements (20 and 32% respectively). Key categories of person-centered care included staff training, care planning procedures, and social activities; and family-involved care included care planning, direct involvement in providing care, and support for families. Few states' licenses contained highly specific regulations. Discussion: This study reveals substantial variation in whether and how states define and regulate person-centered and family-involved care for people living with dementia in AL. MC-specific licenses are roughly twice as likely to require these policies, but fewer than two-thirds of MC-AL communities are covered. State licenses take different approaches to categorizing and specifying these policies. These findings suggest uneven application of core principles of AL associated with quality of life and satisfaction.

Indexed as

Alzheimer’s diseaseassisted livingcare partnerlong-term carepublic policy

Identifiers

PMID42359101
PMCPMC13291062

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.