Evidence map›Paper›PMID 42358520›Full record

ArticlePulmonary circulation2026

Patient Perspectives on Palliative Care in Pulmonary Arterial Hypertension in the United States.

Karim El-Kersh, Rebecca Crawford, Hilary DuBrock, Peter Classi, Phuong Phan, Lori McLeod, Benjamin Wu, Denise Sese

Abstract read
In one paragraph

Article in Pulmonary circulation, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Karim El-KershUniversity of Arizona College of Medicine Phoenix Arizona USA.ORCID https://orcid.org/0000-0003-1285-3628
Rebecca CrawfordRTI Health Solutions Manchester UK.
Hilary DuBrockMayo Clinic Rochester Minnesota USA.ORCID https://orcid.org/0000-0001-8410-4429
Peter ClassiUnited Therapeutics Corporation Durham North Carolina USA.
Phuong PhanUnited Therapeutics Corporation Durham North Carolina USA.
Lori McLeodRTI Health Solutions Durham North Carolina USA.
Benjamin WuUnited Therapeutics Corporation Durham North Carolina USA.ORCID https://orcid.org/0000-0001-8975-8480
Denise SeseMedical University of South Carolina Charleston South Carolina USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Palliative care can be offered concurrently as a treatment option to patients with pulmonary arterial hypertension (PAH) to relieve symptoms and improve quality of life. However, it is infrequently used and is associated with misconceptions. Limited studies have reported patients' perspectives of palliative care as a treatment option for PAH. We conducted a web-based survey, informed by a brief targeted literature review and input from patients and clinicians, which was completed by adults (≥ 18 years) in the United States (US) with self-reported PAH. Patients reported demographic and disease variables and their perspectives and experiences with palliative care. Patients self-reported their Pulmonary Hypertension Functional Class Self-Report class, EmPHasis-10, and 6-min walk test. A total of 200 respondents (86.5% female; mean age 58.5 years) from 42 US states completed the survey between 19 September and 3 October 2023. Most respondents described palliative care as "end-of-life care" (

Indexed as

palliative carepatient surveypulmonary arterial hypertension

Identifiers

PMID42358520
PMCPMC13292157

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.