Evidence map›Paper›PMID 42354250›Full record

ArticleInternational journal of environmental research and public health2026

"When the Worlds Change and We Get Old": Indigenous Older Adults Reflecting on Dementia and Aging.

Tamar Ginossar, Erika L Partridge, John C Adair, Donica M Ghahate, Michele M Quam, Jillian L Prestopnik, Janice A Knoefel, Sephira G Ryman, Gary A Rosenberg, Vallabh O Shah

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Article in International journal of environmental research and public health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Tamar GinossarCommunication and Journalism, University of New Mexico, Albuquerque, NM 87131, USA.
Erika L PartridgeCenter for Memory & Aging, University of New Mexico Health Science Center, Albuquerque, NM 87106, USA.
John C AdairCenter for Memory & Aging, University of New Mexico Health Science Center, Albuquerque, NM 87106, USA.ORCID 0009-0003-9651-7396
Donica M GhahatePueblo of Zuni, Zuni Pueblo, NM 87327, USA.
Michele M QuamCenter for Memory & Aging, University of New Mexico Health Science Center, Albuquerque, NM 87106, USA.
Jillian L PrestopnikCenter for Memory & Aging, University of New Mexico Health Science Center, Albuquerque, NM 87106, USA.ORCID 0000-0002-7831-8620
Janice A KnoefelCenter for Memory & Aging, University of New Mexico Health Science Center, Albuquerque, NM 87106, USA.
Sephira G RymanCenter for Memory & Aging, University of New Mexico Health Science Center, Albuquerque, NM 87106, USA.ORCID 0000-0002-1758-3391
Gary A RosenbergCenter for Memory & Aging, University of New Mexico Health Science Center, Albuquerque, NM 87106, USA.
Vallabh O ShahDepartment of Internal Medicine, University of New Mexico Health Sciences Center, Albuquerque, NM 87131, USA.

Funding

NIH HHS 015003-2125
6 · The paper itself

Abstract

backgroundUnderstanding the perspectives of Indigenous older adults about aging and dementia in different Indigenous communities can inform the provision of culturally grounded services and advance equity. However, the experiences and perspectives of Southwestern Pueblo communities are under-researched.

methodsApproved by the Zuni Tribal Government and IRB, this community-engaged, qualitative research explored Zuni older adults' perceptions, experiences, and support needs. Two co-authors who are community members co-led four focus groups and transcribed them.

resultsTwenty participants in four focus groups shared holistic perceptions of dementia. Whereas they often described dementia as a part of aging, they also expressed a strong desire for specialized dementia care and information. They expressed a strong commitment to caregiving as a cultural value, along with challenges and the need for resources to support caregiving as part of specialized dementia healthcare. The challenges experienced by community members were exacerbated by the devastating impact of the COVID-19 pandemic, including the loss of loved ones, long-term COVID-19, disruption of gatherings, loneliness and social isolation.

conclusionsThe need for culturally grounded services is inseparable from Zuni participants' requests for specialized dementia services (including prevention, screening, and caregiving). As the first study to report on the impact of the COVID-19 pandemic on Zuni aging, it highlights the importance of re-building social services and gatherings in planning of service provision.

Indexed as

AgingDementiaAgedAged, 80 and overCOVID-19FemaleFocus GroupsHumansPandemicsQualitative ResearchSARS-CoV-2agingAlzheimer’s disease and related dementiascaregivingcommunity-engaged researchCOVID-19 and social isolationculturally grounded dementia caredementiaIndigenous healthNative American older adultsSouthwester Pueblos

Identifiers

PMID42354250
PMCPMC13300107

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.