Evidence map›Paper›PMID 42350983›Full record

ArticleBMC geriatrics2026

Older adults with advanced chronic illness and emergency department care: the hermeneutic stories of Bill, Edie and Nicole.

Colleen Cheek, Lieke Richardson, Elizabeth Austin, Emilie Francis-Auton, Margaret Murphy, Aaron De Los Santos, Matthew Vukasovic, Ling Zeng, Peter Hibbert, Kate Churruca and 4 more

Abstract read
In one paragraph

Article in BMC geriatrics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Colleen CheekAustralian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde, Sydney, Australia. Colleen.Cheek@mq.edu.au.ORCID 0000-0001-9426-1102
Lieke RichardsonAustralian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde, Sydney, Australia.ORCID 0009-0007-1892-1587
Elizabeth AustinAustralian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde, Sydney, Australia.ORCID 0000-0002-8438-2362
Emilie Francis-AutonAustralian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde, Sydney, Australia.ORCID 0000-0001-9632-2298
Margaret MurphyWestern Sydney Local Health District, Darcy Road, Westmead, Sydney, Australia.ORCID 0000-0002-8937-8418
Aaron De Los SantosWestern Sydney Local Health District, Darcy Road, Westmead, Sydney, Australia.
Matthew VukasovicWestern Sydney Local Health District, Darcy Road, Westmead, Sydney, Australia.
Ling ZengAustralian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde, Sydney, Australia.ORCID 0000-0002-7228-0027
Peter HibbertAustralian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde, Sydney, Australia.ORCID 0000-0001-7865-343X
Kate ChurrucaAustralian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde, Sydney, Australia.ORCID 0000-0002-9923-3116
Rebecca MitchellAustralian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde, Sydney, Australia.ORCID 0000-0003-1939-1761
Tolesa OkubaAustralian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde, Sydney, Australia.ORCID 0000-0002-9335-0012
Anthony BrownHealth Consumers NSW, Suite F/ LG Floor, 280 Pitt St, Sydney, NSW, 2000, Australia.ORCID 0000-0001-7246-9068
Robyn Clay-WilliamsAustralian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde, Sydney, Australia.ORCID 0000-0002-6107-7445

Funding

Australian Government Medical Research Future Fund 2022:APP2018361
6 · The paper itself

Abstract

backgroundOlder adults are living longer, often with multiple health conditions including frailty, and seek care in the Emergency Department (ED) proportionately more than younger adults. Increasing demand for care requires adaptation of service models across the health system as well as strategies within the ED itself. The lived experience of older adults with advanced chronic illnesses and/or frailty accessing EDs is little understood. We aimed to illuminate these experiences to identify areas for care improvement.

methodsOne local health district (population > 1 million) in Sydney, Australia. Qualitative interviews with older adults (≥ 65 years), who were receiving support in the community or who were residents of care homes and had attended one of three EDs in the previous 12 months, or their informal carers. Hermeneutic phenomenology was used to analyse the data and present findings within the context of human life rather than the boundedness of the ED.

resultsTwelve interviews were conducted: seven older adults, three carers, and two older adult and carer dyads. The hermeneutic stories of Bill and Edie, constructed from collective older adult interviews, illustrate how older adults with increasing dependence on the care of others eventually acquiesce to a system that is fragmented, inflexible, and population- and process-focussed, rather than person-oriented. Nicole's story illustrates carer distress in seeing older adults as passive recipients of care, and frustration in not being able to adequately represent them.

conclusionsThe ED becomes a principal provider of care for older adults with advanced chronic illnesses and frailty when they are at their most weak. Narratives of acquiescence, where older adults yield to authority or pressure or limit their agency as a choice, are a novel finding in health services research, Earlier identification of advancing illness, connection with support services, sensitivity to the changing preferences of older adults, and design for older adults' needs in ED must be supported by aligned policy and resources that strengthen community care and promote continuity in life.

Indexed as

CaregiversEmergency Service, HospitalHermeneuticsAgedAged, 80 and overChronic DiseaseEmergency Room VisitsFemaleHumansMaleAcquiescenceContinuityEnd-of-lifeExperience-based codesignFrailtyQualitative

Identifiers

PMID42350983
PMCPMC13504968

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.