ArticleIndian journal of community medicine : official publication of Indian Association of Preventive & Social Medicine
The Ripple Effect: Aftereffects and Social Consequences of Organ Donation Decisions.
Article in Indian journal of community medicine : official publication of Indian Association of Preventive & Social Medicine. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Context: Organ donation represents a profound act of compassion and solidarity, offering hope to those grappling with end stage organ failure. While many families ultimately choose to proceed with organ donation, a significant portion remains hesitant or outrightly refuse. The ripples of the decision to donate organs are felt for a long time after the decision has been undertaken. Aims: To evaluate the aftereffects of organ donation decision. Settings and Design: A qualitative descriptive study, conducted at a tertiary care hospital in North India, based on a semistructured questionnaire about the experiences of decision-makers post donation administered telephonically. The decisions leading to successful organ donation between July 2019 and June 2023 were considered. A purposive sample of 81 decision-makers participated in the study (response rate = 75%). Subjects and Methods: Data were collected through telephonic interviews with family members using a semistructured questionnaire on postdonation experiences. Interviews were conducted in Hindi and/or English and analyzed using a thematic-content approach. Statistical Analysis Used: Microsoft Excel (Manufactured by Microsoft Corporation, Redmond, Washington, United States of America (USA) was used for thematic content analysis. The consolidated criteria for reporting qualitative research (COREQ) guidelines were used for reporting. Results: Positive reactions highlighted recognition and inspiration, showing how the decision can inspire others and promote broader understanding and acceptance of organ donation. However, families also faced significant criticism regarding the sanctity of the body, with some adhering to the empty body myths. Accusations and blame were common, leading to social stigma, ostracization, social isolation, and threats of legal action. Conclusions: The study provides a comprehensive analysis of the postdonation experiences of donor families, highlighting both positive and negative repercussions. Despite fears of societal criticism, the study found that most societal members appreciated the decision to donate organs.
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