Evidence map›Paper›PMID 42341334›Full record

ArticleOncology nursing forum2026

Concordance Between Patient-Reported and Clinically Documented Symptoms in Acute Myeloid Leukemia.

Sena Chae, Jaewon Bae, Nayung Youn, Hanh Pham, Karen Dunn Lopez, Grerk Sutamtewagul, Barbara Rakel

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Article in Oncology nursing forum, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Sena ChaeSena Chae.
Jaewon BaeJaewon Bae.
Nayung YounNayung Youn.
Hanh PhamHanh Pham.
Karen Dunn LopezKaren Dunn Lopez.
Grerk SutamtewagulGrerk Sutamtewagul.
Barbara RakelBarbara Rakel.

Funding

Exploratory Center of Excellence for Advancing Multimorbidity Science (CAMS)P20NR018081 · NINR · UNIVERSITY OF IOWA · PI WILLIAMS, JANET K. · 2018 to 2022
$2.2M
NINR NIH HHS P20 NR018081
6 · The paper itself

Abstract

objectivesTo describe the frequency and documentation patterns of patient-reported and clinically documented symptoms, and to determine the degree of concordance and discordance between patient-reported symptoms and electronic health record (EHR) documentation. SAMPLE &

setting31 adult patients with acute myeloid leukemia hospitalized at a large academic tertiary healthcare center. METHODS & VARIABLES: Self-reported symptoms were collected using a modified Memorial Symptom Assessment Scale, in which patients reported symptoms experienced during the prior seven days. Clinician-documented symptoms were manually extracted from clinical notes and nursing flow sheets in the EHR. Concordance and discordance were evaluated using Cohen's kappa and McNemar's tests.

resultsLack of energy (87% patients, 87% clinicians) and lack of appetite (74% patients, 84% clinicians) were the most frequently reported symptoms. However, many symptoms, particularly psychosocial symptoms such as feeling sad (n = 17 patients, 2 clinicians; kappa = -0.01, p = 0.001) and feeling irritable (n = 10 patients, 2 clinicians; kappa = -0.12, p = 0.043), showed substantial discordance and were often underdocumented in the EHR, suggesting that subjective patient experiences may be overlooked in routine documentation. IMPLICATIONS FOR NURSING: Accurate and comprehensive symptom documentation is essential for effective symptom management and clinical decision-making. Integrating structured symptom assessment tools or patient-reported outcomes into the EHR may improve documentation accuracy and enhance the quality of care for patients with acute myeloid leukemia.

Indexed as

DocumentationElectronic Health RecordsLeukemia, Myeloid, AcutePatient Reported Outcome MeasuresSelf ReportSymptom AssessmentAdultAgedAged, 80 and overFemaleHumansMaleMiddle AgedOncology NursingSymptom Burdendocumentationelectronic health recordsleukemiasymptom assessment

Identifiers

PMID42341334
PMCPMC13309155

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.