Evidence map›Paper›PMID 42337571›Full record

ArticleBMC health services research2026

Developing a rehabilitation intervention for eating and drinking difficulties following stroke through co-design stakeholder workshops.

Natalie Jones, Susan Mawson, Avril Drummond, Lily Booth, Polly Sedman, Erin Horner, Marge Allen, Alicia O'Cathain

Registry-linked trialAbstract read
In one paragraph

Article in BMC health services research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05102812 (Feasibility of a Breakfast Group Intervention for Acute Stroke Units, to Provide Intensive Eating and Drinking Interventions as Well as Integrated Multi-disciplinary Team Working and Personalized Care), which is not on this map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05102812 nacompletednot on this map

Feasibility of a Breakfast Group Intervention for Acute Stroke Units, to Provide Intensive Eating and Drinking Interventions as Well as Integrated Multi-disciplinary Team Working and Personalized Care

TypeinterventionalSponsorSheffield Teaching Hospitals NHS Foundation TrustRan2022 to 2023Enrolled134ConditionsStrokeArmsBreakfast Group Intervention
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Natalie JonesScHARR, Division of Medicine and Population Health, University of Sheffield, 3rd Floor, 30 Regents Court, Sheffield, S1 4DA, UK. natalie.jones56@nhs.net.ORCID http://orcid.org/0000-0002-6177-1808
Susan MawsonScHARR, Division of Medicine and Population Health, University of Sheffield, 3rd Floor, 30 Regents Court, Sheffield, S1 4DA, UK.ORCID http://orcid.org/0000-0003-2795-8983
Avril DrummondSchool of Sport, Exercise and Health Sciences, Loughborough University, Epinal Way, Loughborough, Leicestershire, LE113TU, UK.ORCID http://orcid.org/0000-0003-1220-8354
Lily BoothSheffield Teaching Hospitals NHS Foundation Trust, Norfolk Park Road, Beachhill, Sheffield, S2 3QE, UK.
Polly SedmanThe Rotherham NHS Foundation Trust Hospital, Moorgate Road, Rotherham, S60 2UD, UK.
Erin HornerDoncaster and Bassetlaw Hospitals, Armthorpe Road, Doncaster, DN2 5LT, UK.
Marge AllenScHARR, Division of Medicine and Population Health, University of Sheffield, 3rd Floor, 30 Regents Court, Sheffield, S1 4DA, UK.
Alicia O'CathainScHARR, Division of Medicine and Population Health, University of Sheffield, 3rd Floor, 30 Regents Court, Sheffield, S1 4DA, UK.ORCID http://orcid.org/0000-0003-4033-506X

Funding

National Institute for Health and Care Research NIHR300529
6 · The paper itself

Abstract

backgroundEating and drinking difficulties are common after stroke and have profound physical, psychological, and social consequences. Although mealtime group activities are commonly used in rehabilitation settings to support recovery, these approaches are rarely standardised, systematically developed, or evidence-informed, and there is limited research evaluating structured group-based mealtime interventions in stroke care. Co-produced, contextually grounded interventions may improve engagement and clinical relevance. This study aimed to co-design a breakfast group intervention to address eating and drinking difficulties for people after stroke in hospital settings.

methodsThis intervention development study was conducted across three secondary care hospital stroke wards. Ten online workshops were held with a 15-member Stakeholder Intervention Development Group comprising stroke survivors, informal carers, and multidisciplinary healthcare professionals. An iterative co-design process was used, informed by prior systematic review findings, observational work, interviews, and trigger films exploring lived experiences. Intervention development combined Hawkins' framework with Experience-Based Co-Design. Workshops involved structured co-design activities, group discussion, and reflection on personal experiences. Data from workshops were synthesised collaboratively to refine intervention content and delivery.

resultsStakeholders co-produced the Breakfast Group Intervention for Stroke Rehabilitation (BISTRo) and an accompanying implementation toolkit. Five core components were identified: (1) multidisciplinary participation, (2) physical rehabilitation, (3) food preparation and choice, (4) peer support, and (5) psychological well-being. The intervention was tailored for delivery on hospital stroke wards, with adaptations for infection control procedures and local contextual variation. Online participatory methods enabled sustained engagement and inclusive contribution from diverse stakeholders.

conclusionsUsing Experience-Based Co-Design within Hawkins' framework supported the inclusive and iterative development of a complex rehabilitation intervention. This co-produced approach generated a contextually grounded breakfast group model suitable for feasibility testing and future evaluation. The findings highlight the value of stakeholder partnership in designing health service interventions addressing post-stroke eating and drinking difficulties.

trial registrationThe study was registered on Clinical Trials.gov ID NCT05102812 on the 17th of February 2022.

Indexed as

Stakeholder ParticipationStrokeStroke RehabilitationFemaleHumansMaleEating and drinkingExperience-based co-designIntervention developmentParticipatory researchPatient and publicStroke

Identifiers

PMID42337571
PMCPMC13556001

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.