ReviewClinical rheumatology2026
The mirror of illness: identity, embodiment, and clinical care in systemic sclerosis.
Review in Clinical rheumatology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Systemic sclerosis (SSc) is a complex autoimmune disease characterized by progressive fibrosis, vasculopathy, and multisystem involvement. While clinical assessment appropriately emphasizes measurable outcomes such as organ involvement and survival, these metrics do not fully capture the lived experience of the disease. This perspective examines how SSc reshapes embodiment, identity, and patient experience beyond conventional clinical measures. Drawing on insights from literature and narrative medicine, it explores themes of bodily estrangement, identity disruption, and adaptation in chronic illness. These dimensions have direct implications for patient-physician communication, treatment adherence, and shared decision-making. Integrating narrative awareness into rheumatology practice may enhance clinicians' ability to recognize psychosocial burden and align care with patient values. A more comprehensive approach to systemic sclerosis, therefore, requires attention not only to measurable disease parameters but also to the meanings patients attach to bodily change and identity over time.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.