Evidence map›Paper›PMID 42332048›Full record

ArticleJournal of perinatology : official journal of the California Perinatal Association2026

Comfort, benefit, and distress: An exploratory study of research experiences of bereaved parents in the neonatal intensive care unit.

Matthew Lin, David N Williams, Giselle Vitcov, Sadath Sayeed, Danielle D DeCourcey, Joanne Wolfe, Christy L Cummings

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Article in Journal of perinatology : official journal of the California Perinatal Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Matthew LinNew York University Grossman School of Medicine, Division of Neonatology and Pediatric Advanced Care Team (PACT), New York, NY, USA. matthew.lin@nyulangone.org.ORCID http://orcid.org/0000-0003-4200-1717
David N WilliamsBoston Children's Hospital, Division of Newborn Medicine, Boston, MA, USA.
Giselle VitcovBoston Children's Hospital, Division of Newborn Medicine, Boston, MA, USA.
Sadath SayeedUniversity of California, Los Angeles, Division of Neonatology, Los Angeles, CA, USA.
Danielle D DeCourceyBoston Children's Hospital, Division of Medical Critical Care, Boston, MA, USA.ORCID http://orcid.org/0000-0002-8309-6540
Joanne WolfeMassachusetts General and Brigham and Women's Hospitals, Boston, MA, USA.
Christy L CummingsMassachusetts General and Brigham and Women's Hospitals, Boston, MA, USA.ORCID http://orcid.org/0000-0003-1579-2947

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundUnderstanding the research experiences of bereaved parents is necessary to advance palliative care.

objectiveTo evaluate levels of and factors associated with bereaved parent comfort, benefit, and distress from research participation and to qualitatively explore research experiences. STUDY

designExploratory analysis of survey data from parents of infants who died in a level IV NICU (2010-2020). Fisher's exact and Chi-square tests were used to identify factors associated with parental comfort, distress, and benefit. Qualitative analyzed was performed using the constant comparative method.

results40/146 parents (27%) responded. 83% reported being "very comfortable" or "comfortable", 83% reported "some" to "a lot" of benefit, 26% reported "a great deal" to "a lot" of distress from participation. Goal-discordant care was significantly associated with distress. Research participation themes included "helping others", "processing experiences" and "re-living negative experiences".

conclusionBereaved NICU parents simultaneously experience distress, comfort, and benefit from research participation.

Identifiers

PMID42332048

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.