Evidence map›Paper›PMID 42324125›Full record

ArticleJournal of applied research in intellectual disabilities : JARID2026

From Methodological Challenges to Recommendations for Future Practice: Lessons From an Ethnographic Study With People With Intellectual Disabilities.

Karina Nissen Frøkjær, Siri Lygum Voldbjerg, Tine Fristrup, Philippa Rasmussen, Mette Grønkjær, Helle Haslund-Thomsen

Abstract read
In one paragraph

Article in Journal of applied research in intellectual disabilities : JARID, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Karina Nissen FrøkjærDepartment of Clinical Medicine, Aalborg University, Aalborg, Denmark.ORCID https://orcid.org/0000-0002-0000-8286
Siri Lygum VoldbjergDepartment of Clinical Medicine, Aalborg University, Aalborg, Denmark.ORCID https://orcid.org/0000-0002-2622-5481
Tine FristrupDanish School of Education, Aarhus University, Aarhus, Denmark.ORCID https://orcid.org/0000-0001-5798-3800
Philippa RasmussenAdelaide Nursing School, University of Adelaide, Adelaide, South Australia, Australia.ORCID https://orcid.org/0000-0001-9451-9097
Mette GrønkjærDepartment of Clinical Medicine, Aalborg University, Aalborg, Denmark.ORCID https://orcid.org/0000-0003-1558-7062
Helle Haslund-ThomsenDepartment of Clinical Medicine, Aalborg University, Aalborg, Denmark.ORCID https://orcid.org/0000-0002-5260-9155

Funding

Aalborg MunicipalityDepartment of Clinical Medicine, Aalborg UniversityDepartment of Nursing, University College of Northern Denmark
6 · The paper itself

Abstract

backgroundMethodological, social and ethical challenges embedded in qualitative research with people with intellectual disabilities call for innovation and approaches that amplify their voices. This paper aims to offer methodological recommendations based on a critical reflection and discussion of the challenges involved in conducting qualitative and inclusive research with people with intellectual disabilities. It focuses on challenges related to inclusion, obtaining consent, conducting participant observations and individual interviews and involvement through an expert panel including people with intellectual disabilities.

methodInclusive research and critical disability studies inspired the analytical lens applied in the discussion.

resultsResearchers are advised to adapt and tailor research methods. This may involve adopting an inclusive approach, establishing prior familiarity, applying multimodal strategies or alternative methods to verbally dominated approaches, such as the sensory-dialogical approach.

conclusionThis paper contributes to existing research methodologies; however, substantial challenges remain and future methodological developments are needed.

Indexed as

Intellectual DisabilityQualitative ResearchResearch DesignAnthropology, CulturalHumansinclusive researchintellectual disabilityinterviewsmethodologyobservationsqualitative research

Identifiers

PMID42324125
PMCPMC13283779

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.