Evidence map›Paper›PMID 42324092›Full record

ArticleInternational wound journal2026

A Patient Bill of Rights and Responsibilities for Wound Prevention and Care in Canada: Grounded in Stories and Guided by Co-Design and Community-Based Participatory Principles.

Idevania G Costa, Catherine Philips, Kathleen Stevens, Catherine Schoales, Irmajean Bajnok, Mariam Botros, Robert Strachan, Samantha Santorelli, Pilar Camargo-Plazas

Abstract read
In one paragraph

Article in International wound journal, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Idevania G CostaSchool of Nursing, Lakehead University, Thunder Bay, Ontario, Canada.ORCID https://orcid.org/0000-0001-8024-2074
Catherine PhilipsSchool of Social Work, Lakehead University, Orillia, Ontario, Canada.
Kathleen StevensSchool of Nursing, Memorial University, St John's, NL, Canada.
Catherine SchoalesSchool of Nursing, Lakehead University, Thunder Bay, Ontario, Canada.
Irmajean BajnokWounds Canada, North York, Ontario, Canada.
Mariam BotrosWounds Canada, North York, Ontario, Canada.
Robert StrachanSchool of Nursing, Lakehead University, Thunder Bay, Ontario, Canada.
Samantha SantorelliSchool of Nursing, Lakehead University, Thunder Bay, Ontario, Canada.
Pilar Camargo-PlazasSchool of Nursing, Queen's, University, Kingston, Ontario, Canada.

Funding

Social Sciences and Humanities Research Council 611-2024-0296
6 · The paper itself

Abstract

This project co-created a Patient Bill of Rights and Responsibilities in Wound Prevention and Care grounded in the lived experiences of patients and care partners. Guided by co-design and community-based participatory research principles, digital stories from the 'Our Voices, Our Stories' initiative, publicly hosted on the Wounds Canada website, were analysed using thematic and interpretive narrative approaches informed by social constructivism. Initial analysis identified nine themes, later expanded through iterative team-based analysis to capture recurring challenges and systemic barriers in wound care. These informed 36 preliminary statements (18 rights, 18 responsibilities), which were refined into a draft framework of 16 rights and 16 responsibilities. The co-creation process engaged diverse participants including individuals with lived experience, care partners, clinicians, and policymakers through three virtual workshops (May-July 2025). Through facilitated discussions and collaboration, the framework was refined to a final set of 12 rights and 12 responsibilities (n = 24), with over 88% agreement among participants. This framework offers a plain-language, equity-oriented approach that positions patients, care partners, and providers as partners in care. This framework serves as an educational and advocacy tool to strengthen person-centred wound care, enhance communication and continuity, and inform practice, education, and policy development.

Indexed as

Patient RightsWounds and InjuriesAdultCanadaCommunity-Based Participatory ResearchFemaleHumansMaleMiddle Agedco‐designdigital storytellinghealth equityparticipatory researchpatient rightswound prevention and care

Identifiers

PMID42324092
PMCPMC13283764

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.