Observational studyBMJ open2026
Factors associated with psychological burden among informal caregivers in outpatient palliative care: a prospective observational study of patient-caregiver dyads in Germany.
Observational study in BMJ open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05082389 (Prediction of Hospital Readmissions in SAPV), which is not on this map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Prediction of Hospital Readmissions in SAPV (Specialised Home Palliative Care) Patients - Identification of Structural Factors and Support Needs of Family Caregivers
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInformal caregivers are of utmost importance in providing sufficient care for palliative outpatients, yet are at risk for psychological burden themselves which might limit their capability to maintain their support.
aimThis project aims to identify structural and psychological factors that are associated with the psychological burden of informal caregivers.
designThe prospective observational study recorded illness-related and structural data. Multiple logistic regressions were performed to identify relevant factors for increased psychological burden. SETTING/
participantsThis monocentric study recruited 250 adult patients of a specialised outpatient palliative care team and 152 caregivers between April 2021 and August 2022.
resultsOf 250 patients screened for participation, 152 caregiver-patient dyads were included in this study. Above-threshold depressivity was reported by 31%, anxiety by 33% and an elaborated psychological distress was stated by 82% of informal caregivers. Multivariate analyses revealed a significant association of above-threshold depressivity with higher daily caregiving time (OR: 3.215; p=0.026) and being highly burdened by COVID-19 (OR: 1.142; p=0.048). Perceived higher burden from COVID-19 seemed to be protective concerning elevated anxiety (OR: 0.859; p=0.024). High distress was non-significantly associated with higher education (p=0.056) and support by a professional nursing service (p=0.069). The statistical models explain 19% (anxiety, depressivity) and 21% (distress) of the total variance.
conclusionAs the psychological burden of informal caregivers in an outpatient setting remains high, it tends to be slightly below those strains reported by informal caregivers in inpatient or curative settings. This project adds to the scarce knowledge about associated factors. Further research could address how to implement these results into daily clinical practice, for example, accounting for risk-factors in discharge routine. TRIAL REGISTRATION NUMBER: NCT05082389.
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