ArticlePalliative care and social practice2026
'It's given us the opportunity': Patient and clinician experiences of serious illness conversations in the NHS acute setting - Results from a UK Qualitative Study.
Article in Palliative care and social practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Background: Despite legal and ethical commitments to dignified end-of-life care, open communication with seriously ill patients remains inconsistent across the National Health Service (NHS). The Serious Illness Care Programme was implemented in two NHS hospital sites to improve communication and care planning for patients with serious illness. Aim: Explore the lived experiences of seriously ill patients and their clinicians participating in Serious Illness Conversations. Design: Qualitative study using a phenomenological approach within an interpretive paradigm. Narrative interviews were undertaken, and Reflexive Thematic Analysis was used to identify patterns of meaning. Setting/Participants: Outpatient clinics in two NHS hospital sites: a tertiary cancer centre and a renal unit within a city teaching hospital. Fourteen patients (seven cancer, seven renal failure) and nine clinicians (six oncologists, three nephrologists) were interviewed. Results: The following three interrelated themes were generated from the analysis: (1) Patients described the conversations as ' Conclusion: Findings from this study directly challenge the commonly held belief that these conversations are inherently negative to reveal the transformative power of these important and necessary conversations. They opened up different types of conversations, giving patients agency to direct certain aspects of their life. However, their integration into routine practice is hindered by structural and cultural constraints. Addressing these barriers is essential to ensure all patients have equitable access to these conversations.
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