Evidence map›Paper›PMID 42301394›Full record

ArticleJournal of community health2026

Awareness of Family Caregiver Resources and Alignment with Traditional Culture in a Midwest Tribal Nation in the United States.

Mary F Wyman, Danielle B Lennon, Jesse Montoure, Lauren W Y McLester-Davis, Colin Hammock, Nickolas Lambrou, Sacheen Lawrence, Debra A Miller, Florence Petri, Megan Zuelsdorff and 1 more

Abstract read
In one paragraph

Article in Journal of community health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Mary F WymanSchool of Medicine and Public Health, University of Wisconsin - Madison, Madison, WI, USA. mfwyman@wisc.edu.ORCID http://orcid.org/0000-0001-5371-9105
Danielle B LennonSchool of Medicine and Public Health, University of Wisconsin - Madison, Madison, WI, USA.
Jesse MontoureSchool of Medicine and Public Health, University of Wisconsin - Madison, Madison, WI, USA.
Lauren W Y McLester-DavisNative American Center for Health Professions, University of Wisconsin - Madison, Madison, WI, USA.
Colin HammockSchool of Medicine and Public Health, University of Wisconsin - Madison, Madison, WI, USA.
Nickolas LambrouSchool of Medicine and Public Health, University of Wisconsin - Madison, Madison, WI, USA.
Sacheen LawrenceWisconsin Alzheimer's Disease Research Center, University of Wisconsin - Madison, Madison, WI, USA.
Debra A MillerOneida Nation Alzheimer's Disease Community Advisory Board, Oneida, WI, USA.
Florence PetriOneida Nation Alzheimer's Disease Community Advisory Board, Oneida, WI, USA.
Megan ZuelsdorffWisconsin Alzheimer's Disease Research Center, University of Wisconsin - Madison, Madison, WI, USA.
Carey E GleasonSchool of Medicine and Public Health, University of Wisconsin - Madison, Madison, WI, USA.

Funding

University of Wisconsin Institute for Clinical and Translational ResearchUL1TR002373 · NCATS · UNIVERSITY OF WISCONSIN-MADISON · PI ELIZABETH S BURNSIDE, Allan R. Brasier · 2017 to 2026
$75.9M
Wisconsin Alzheimer's Disease Research CenterP30AG062715 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI Sanjay Asthana · 2019 to 2026
$34.5M
Wisconsin Alzheimer's Disease Research CenterP50AG033514 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI ASTHANA, SANJAY · 2009 to 2018
$16.2M
Addressing Alzheimer's Disease and Related Dementias Disparities: The American Indigenous Cognitive Assessment (AMICA) ProjectR01AG074231 · NIA · UNIVERSITY OF MINNESOTA · PI CAREY E GLEASON, Kristen Jacklin · 2022 to 2026
$10.0M
Indigenous Cultural Understandings of Alzheimer's Disease and Related Dementias - Research and Engagement (I-CARE)R01AG062307 · NIA · UNIVERSITY OF MINNESOTA · PI JACKLIN, KRISTEN · 2021 to 2025
$7.5M
HSRD VA IK2 HX003080Institute for Clinical and Translational Research, University of Wisconsin, Madison UL1TR002373NCATS NIH HHS UL1 TR002373NIA NIH HHS P30 AG062715NIA NIH HHS P50 AG033514NIA NIH HHS R01 AG062307NIA NIH HHS R01 AG074231U.S. Department of Veterans Affairs IK2 HX003080
6 · The paper itself

Abstract

Family caregivers helping adults with functional needs, including older adults, can benefit from training, support groups, and other services. However, these resources are often underutilized. Caregiving is particularly common in Indigenous communities, but little is known about how Indigenous caregivers consider utilization of supportive resources. To guide efforts to increase utilization, this study sought to describe awareness and attitudes regarding caregiver services within a Midwest Tribal Nation in the United States. Working within a tribally-led, community-based participatory research framework, an online survey was offered to all Tribal members and affiliates aged ≥ 18 years, covering caregiver status, resource awareness and source of information, and beliefs about service use alignment with traditional cultural values. We examined associations between selected factors and awareness. Participants (N = 481) had a mean age of 52.78 (16.6) years, were primarily female (75.5%), and resided both on and off reservation. Almost half (n = 203; 43%) were current caregivers, of whom the majority helped an older adult (n = 173; 83.6%) and/or someone with memory loss (n = 127; 61.4%). Current caregivers, older adults, and reservation residents reported the highest levels of awareness. A significant proportion of respondents (17%) indicated no awareness of any of the 7 resources queried. Primary sources of information for caregivers included independent research and social networks; for non-caregivers, Tribal communications were cited most frequently. Perceptions of alignment of resource use with traditional culture varied by service. Findings add to our understanding of Indigenous family caregiving and can inform public outreach and interventions to increase use of caregiver services.

Indexed as

CaregiversHealth Knowledge, Attitudes, PracticeIndians, North AmericanAdultAgedAwarenessCommunity-Based Participatory ResearchFemaleHumansMaleMiddle AgedMidwestern United StatesSurveys and QuestionnairesUnited StatesAlzheimer’s disease and related dementiasAmerican Indian(s)/Alaska Native(s)Cultural valuesFamily caregivingNative or indigenous populationsOlder adultsPublic health service awarenessService utilization

Identifiers

PMID42301394
PMCPMC13605749

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.