Evidence map›Paper›PMID 42298810›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2026

Building the Capacity of Adolescents as Researchers: The Co-Creation of the Health Hive Online Course.

Allyson R Todd, Sara Wardak, K Connor, Emma Soo, Elena Wang, Dominik Mautner, Dewa Wardak, Putu Novi Arfirsta Dharmayani, Anna C Singleton, Josephine Chau and 4 more

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Allyson R ToddSusan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.ORCID 0000-0001-6948-9754
Sara WardakSusan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
K ConnorSusan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Emma SooSusan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Elena WangSusan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Dominik MautnerSusan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Dewa WardakBusiness School, The University of Sydney, Sydney, New South Wales, Australia.ORCID 0000-0002-3095-9146
Putu Novi Arfirsta DharmayaniSchool of Health Sciences and Nursing, Faculty of Medicine, Health, and Human Sciences, Macquarie University, Sydney, New South Wales, Australia.ORCID 0000-0001-8227-1127
Anna C SingletonSusan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Josephine ChauSchool of Health Sciences and Nursing, Faculty of Medicine, Health, and Human Sciences, Macquarie University, Sydney, New South Wales, Australia.ORCID 0000-0001-6261-2545
Seema MihrshahiThe School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Rebecca RaesideSusan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.ORCID 0000-0003-2016-6393
Stephanie R PartridgeSusan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Health Hive Team

Funding

Australian Government Medical Research Future Fund Consumer-Led Grant #2023165National Heart Foundation Future Leader Fellowship 106646NHMRC Emerging Leadership Investigator Grant APP2033054NHMRC Emerging Leadership (level 1) Investigator Grant GNT2017575University of Sydney Horizon FellowshipUniversity of Sydney Postgraduate Research Scholarship in Adolescent Health and Nutrition
6 · The paper itself

Abstract

backgroundAdolescent engagement is critical to ensuring research meets adolescent health and well-being needs; however, it is not common practice. To maintain research quality, meaningful adolescent engagement requires tailored support and training, yet limited resources exist globally. This study aimed to describe the co-creation process and outputs of developing a freely accessible online course to build adolescent research capacity in public health (14-24 years).

methodsAn iterative participatory co-creation research design with four stages, grounded in Positive Youth Development Theory (strengths-based) and Youth Participatory Action Research (YPAR) principles (participatory, inquiry-based and transformative). Adolescents, academics and community partners collaborated at every stage as equal knowledge holders. Stage i: An evidence brief was developed synthesising literature reviews and diverse adolescents' lived experience to inform course development. Stage ii: A co-design workshop was held in March 2025 to design the course structure, style and delivery through interactive group activities, dot-voting and inclusive dialogue. Stage iii: Content was drafted with iterative rounds of feedback with knowledge holders. Stage iv: Course production and user-testing, hosted on Open edX. OUTPUTS: The iterative co-creation process with 37 knowledge holders (43% 14-24 years) led to an online course structured into six core modules: (1) The power of engaging young people in research, (2) What is public research?, (3) Ethics-how to do research the 'right way', (4) Mentally safe participation, (5) How to get involved, and (6) How to apply learnings. Consensus was reached on style and delivery of modules to enhance engagement, content credibility and trust, reflecting adolescent priorities. The course is self-paced (~3 h duration), strengths-based, interactive and accessible (e.g., short videos, quizzes, closed captions, audio-visuals and grade-8 reading level). It launched in October 2025 and is accessible worldwide.

conclusionThe co-created accessible online course aims to support adolescents to be active contributors in public health research. This training has potential to create pathways for inclusive and sustained adolescent engagement in research, translating into evidence-based research and policy. Effectiveness of the training will be assessed through a mixed-methods evaluation. PATIENT OR PUBLIC CONTRIBUTION: Adolescents were involved in all co-creation stages from inception to delivery, at various capacities within the Health Hive Steering Committee as paid employees. They were provided mentoring and training to fulfil their role throughout each stage. Their contributions included developing the grant proposal, conceptualising the study name and logo, and informing the workshop evidence brief and agenda. They also played an active role at the co-design workshop, including facilitating and presenting. Further, adolescents informed the course structure, content and delivery of the course and provided iterative feedback during the content creation stage. They also featured in the production of course materials including videos and audio recordings and user-tested the course. They also engaged as co-authors of this manuscript (S.W., E.S., K.C., E.W. and D.M.). A checklist adapted by Nagata et al. 2025 of reporting research with adolescent and youth engagement is available in the supporting material.

Indexed as

Adolescent HealthCapacity BuildingEducation, DistanceResearch PersonnelAdolescentCommunity-Based Participatory ResearchHumansInternetYoung Adultadolescent healthco‐designeducationhealth promotionparticipatory action researchyouth engagement

Identifiers

PMID42298810
PMCPMC13269657

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.