Evidence map›Paper›PMID 42298289›Full record

ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2026

Provider and patient perspectives on the diagnosis and treatment of Alzheimer's disease: A global perspective from the Global Alzheimer's Leadership Series (GoALS).

Philippe Amouyel, Sandrine Andrieu, Angela Bradshaw, Ralph C Carmona, Magali Dumont, Lea Tenenholz Grinberg, Takeshi Iwatsubo, Oskar Hansson, Clifford R Jack, Gregory A Jicha and 17 more

Abstract read
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In one paragraph

Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors.

Philippe AmouyelFoundation Alzheimer, Paris, France.
Sandrine AndrieuIHU HealthAge, Toulouse University Hospital, Toulouse, France.
Angela BradshawAlzheimer Europe, Senningerberg, Luxembourg.
Ralph C CarmonaUniversity of California, Oakland, California, USA.
Magali DumontFoundation Alzheimer, Paris, France.
Lea Tenenholz GrinbergDepartment of Neurology, University of California at San Francisco, San Francisco, California, USA.
Takeshi IwatsuboDepartment of Neuropathology, The University of Tokyo, Tokyo, Japan.
Oskar HanssonClinical Memory Research Unit, Department of Clinical Sciences Malmö, Faculty of Medicine, Lund University, Lund, Sweden.
Clifford R JackDepartment of Radiology, Mayo Clinic, Rochester, Minnesota, USA.
Gregory A JichaSanders-Brown Center on Aging, University of Kentucky, Lexington, Kentucky, USA.
Simin MahinradMedical & Scientific Relations, Alzheimer's Association, Chicago, Illinois, USA.
Eric McDadeDepartment of Neurology, Washington University St Louis, St Louis, Missouri, USA.
Catherine J MummeryDementia Research Centre, Institute of Neurology, University College London, London, UK.
Ronald C PetersenDepartment of Neurology, Mayo Clinic, Rochester, Minnesota, USA.
Shelagh RobinsonEuropean Working Group of People With Dementia, Alzheimer Europe, Senningerberg, Luxembourg.
Julie A SchneiderRush Alzheimer's Disease Center, Departments of Pathology and Neurological Sciences, Rush University Medical School, Chicago, Illinois, USA.
Lenny ShellcrossWorld Dementia Council, London, UK.
Amanda G SmithUSF Health Byrd Alzheimer's Institute, University of South Florida, Tampa, Florida, USA.
Heather M SnyderMedical & Scientific Relations, Alzheimer's Association, Chicago, Illinois, USA.
Beth TapplyEuropean Working Group of People With Dementia (Supporter), Alzheimer Europe, Senningerberg, Luxembourg.
Charlotte TeunissenNeurochemistry Laboratory, Department of Laboratory Medicine, Neurodegeneration, Amsterdam Neuroscience, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
Wiesje M van der FlierAlzheimer Center Amsterdam, Neurology, Vrije Universiteit Amsterdam, Amsterdam UMC (VUmc), Amsterdam, The Netherlands.
Bruno VellasIHU HealthAge, Toulouse University Hospital, Toulouse, France.
David WallonDepartment of Neurology and CNRMAJ, Univ Rouen Normandie, Normandie Univ, Inserm U1245 and CHU Rouen, Rouen, France.
Jeff D WilliamsonSection of Gerontology and Geriatric Medicine, Department of Internal Medicine, Wake Forest University School of Medicine, Winston-Salem, North Carolina, USA.
Donna WilcockAlzheimer's Disease Research, Center for Neurodegenerative Disorders, Department of Neurology, IUSM/IUH Neuroscience Institute and Stark Neuroscience Research Institute, Indiana University School of Medicine, Indianapolis, Indiana, USA.
Maria C CarrilloMedical & Scientific Relations, Alzheimer's Association, Chicago, Illinois, USA.

Funding

Wake Forest University School of Medicine Alzheimer's Disease Research CenterP30AG072947 · NIA · WAKE FOREST UNIVERSITY HEALTH SCIENCES · PI SUZANNE CRAFT · 2021 to 2026
$24.3M
University of Kentucky Alzheimer's Disease Research CenterP30AG072946 · NIA · UNIVERSITY OF KENTUCKY · PI LINDA J VAN ELDIK · 2021 to 2026
$23.5M
NIA NIH HHS P30 AG072946NIA NIH HHS P30 AG072947
6 · The paper itself

Abstract

Since 2016, the Alzheimer's Association and the Fondation Alzheimer have hosted Global Alzheimer's Leadership Series (GoALS) global think tanks, with world-leading experts for innovative discussions to advance Alzheimer's disease (AD) research and care. The second GoALS think tank, held in June 2024 in Paris, focused on the relationship between biological changes and clinical manifestations of AD in the context of the evolving therapeutic landscape. Discussions spanned real-world experiences of providers, patients, and their families, theoretical considerations, and health system challenges. The lived experience perspective was central to these discussions. The importance of shared decision-making, clear and transparent communication, and the need for real-world data to holistically support patients during their experiences were highlighted. This manuscript shares key insights from both the think tank meeting in Paris and a featured research session at the 2024 Alzheimer's Association International Conference that expanded the discussion themes for broader dissemination with the community.

Indexed as

Alzheimer DiseaseHumansAlzheimer's diseaseclinical meaningfulnessdementiahealth systemsnomenclaturepatient‐caregiver dyadreal‐world datashared decision‐makingtherapies

Identifiers

PMID42298289
PMCPMC13269013

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.