Evidence map›Paper›PMID 42296532›Full record

Observational studyJournal of medical Internet research2026

Social Support Mechanisms in an Online Type 1 Diabetes Community: Social Network Analysis of Stakeholder Diversity and Disease Duration.

Yujia Zhu, Yanxiang Zhang, Chenxiao Zhao, Xifeng Zeng, Xueying Zheng

Abstract readObservational Study
In one paragraph

Observational study in Journal of medical Internet research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Yujia Zhu *Department of Endocrinology and Metabolism, The First Affiliated Hospital of USTC, Division of Life Sciences and Medicine, University of Science and Technology of China, No. 5 Building, South Campus (Anhui Provincial Hospital), Hefei, Anhui, 230036, China, 86 13750400548.ORCID http://orcid.org/0009-0001-3275-3942
Yanxiang Zhang *Department of Communication of Science and Technology, University of Science and Technology of China, Hefei, Anhui, China.ORCID http://orcid.org/0000-0002-5010-1526
Chenxiao ZhaoDepartment of Communication of Science and Technology, University of Science and Technology of China, Hefei, Anhui, China.ORCID http://orcid.org/0009-0009-2370-715X
Xifeng ZengShenzhen Aibowei Biotechnology Co., Ltd. (Tangtangquan), Shenzhen, Guangdong, China.ORCID http://orcid.org/0009-0005-6958-6032
Xueying ZhengDepartment of Endocrinology and Metabolism, The First Affiliated Hospital of USTC, Division of Life Sciences and Medicine, University of Science and Technology of China, No. 5 Building, South Campus (Anhui Provincial Hospital), Hefei, Anhui, 230036, China, 86 13750400548.ORCID http://orcid.org/0000-0001-8395-9476

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Online health communities (OHCs) have emerged as critical platforms for patients with type 1 diabetes (T1D) to exchange informational and emotional support. However, how stakeholder roles and disease duration jointly shape support dynamics and influence formation remains underexplored. Objective: This study aimed to examine network-based social support mechanisms in a large T1D OHC, focusing on how stakeholder diversity and disease duration are associated with social support behaviors, subnetwork structures, and user influence. Methods: This retrospective observational study analyzed digital trace data from China's largest T1D online community (January 1-May 20, 2024), comprising 43,788 posts and 145,423 comments contributed by 1393 users. We manually annotated 2000 randomly sampled posts and fine-tuned a GPT-4o-mini (OpenAI) to classify support type (informational or emotional, and seeking or providing), yielding 20,384 support-related posts and 56,953 comments from 1224 users. We constructed weighted directed informational and emotional interaction networks and modeled predictors of a composite influence metric (Relative Centrality) using a gamma log-link generalized linear model (including demographics, identity, sentiment, disease duration, posting orientation, and cyclical activity time). Analyses were conducted in Python (version 3.11; Python Software Foundation). Statistical significance was set at P<.05. Results: Support predominantly flowed from longer-duration members (≥ y) to those at earlier stages (≤5 y). Both subnetworks exhibited multicentered, star-like structures; the informational subnetwork had broader participation (density 0.031, diameter 7), while the emotional network was denser (density 0.039, diameter 6). In the influence model, peer supporters had substantially higher influence than patients (exp(β)=34.79, 95% CI 18.94-64.08; P<.001), professionals lower (exp(β)=0.41, 95% CI 0.17-0.99; P=.055), and women higher than men (exp(β)=1.65, 95% CI 1.23-2.23; P=.001). Positive sentiment was associated with higher influence (exp(β)=1.91, 95% CI 1.22-2.97; P=.005), and negative lower (exp(β)=0.54, 95% CI 0.37-0.79; P=.001). Influence followed an inverted U-shaped trajectory over disease duration, peaking at approximately the 116th month (95% CI 43.25-188.91). Conclusions: This study suggests that social support patterns and user influence in a T1D OHC vary by stakeholder role and disease duration. Users with shorter disease duration more often sought support, whereas longer-duration users more often provided support, and informational and emotional exchanges formed distinct interaction subnetworks. Peer supporters were the most influential users; influence was also associated with gender, sentiment, activity timing, and a nonlinear (inverted U-shaped) relationship with disease duration. These findings may inform peer-facilitated, stage-tailored community strategies, with professionals engaged in targeted, complementary roles. A patient-centered collaborative care approach integrating peer experience with multidisciplinary clinical input could be explored in future work.

Indexed as

Diabetes Mellitus, Type 1Social Network AnalysisSocial NetworkingSocial SupportAdultChinaFemaleHumansInternetMaleRetrospective StudiesSocial Groupdiabetes mellitus type 1large language modelsonline health communitiespeer groupsentiment analysissocial network analysissocial support

Identifiers

PMID42296532
PMCPMC13268640

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.