Evidence map›Paper›PMID 42292654›Full record

ArticleBioSocieties2026

Data roles: youth mental health outcome measures and the young people who defy them.

Rosie Jones McVey

Abstract read
In one paragraph

Article in BioSocieties, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

1 author.

Rosie Jones McVeyCentre for Cultures and Environments of Health, University of Exeter, Queens Drive, Exeter, EX4 4QH UK.ORCID 0000-0003-2313-4258

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Health measurement shapes peoples' political relationships with the state, with services, with one another, and with oneself. But what are the political dynamics at play when people can't/won't/don't have health measurements taken? And what is the political predicament of those whose needs, values, and experiences don't fit within the measures available? This paper presents a case study of one youth mental health service's efforts to improve their collection of outcome measures, and reinvigorates the concept of 'sick role' to describe young people as defying the 'data roles' expected of them. The concept of data roles draws attention to the political dynamics of measurement on two interlinked scales: the interpersonal, embodied measurement encounter; and the systemic care-measurement assemblage. In the case reported here, measures are hard to collect given the 'routinized intimacy' required, and the restrictive, normative, individualised understandings of need inscribed within available measures. Yet defying measurement equates to a marginalised, precarious political position for young people and for the services that support them. In sum, the data roles expected of young people ask too much of them, and do too little for them.

Indexed as

AccountabilityDataMental healthOutcome measuresWellbeingYouth

Identifiers

PMID42292654
PMCPMC13259925

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.