Evidence map›Paper›PMID 42291767›Full record

ArticleDigital health

Tele-delivered caregiver coaching for autism in South Africa - A mixed-methods study of acceptability, appropriateness and feasibility.

Marisa Viljoen, Zahrah Ismail Dawood, Noleen Seris, Nokuthula Shabalala, Minkateko Ndlovu, Petrus J de Vries, Lauren Franz

Abstract read
In one paragraph

Article in Digital health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Marisa ViljoenCentre for Autism Research in Africa (CARA), Division of Child & Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.ORCID https://orcid.org/0000-0001-5062-8654
Zahrah Ismail DawoodDivision of Communication Sciences and Disorders, Department of Health and Rehabilitation Sciences, University of Cape Town, Cape Town, South Africa.
Noleen SerisCentre for Autism Research in Africa (CARA), Division of Child & Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.
Nokuthula ShabalalaCentre for Autism Research in Africa (CARA), Division of Child & Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.
Minkateko NdlovuCentre for Autism Research in Africa (CARA), Division of Child & Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.
Petrus J de VriesCentre for Autism Research in Africa (CARA), Division of Child & Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.
Lauren FranzCentre for Autism Research in Africa (CARA), Division of Child & Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.

Funding

Autism Caregiver Coaching in AfricaR01MH127573 · NIMH · DUKE UNIVERSITY · PI Lauren Franz · 2022 to 2026
$2.9M
Pilot Study to Improve Access to Early Intervention for Autism in AfricaK01MH104370 · NIMH · DUKE UNIVERSITY · PI FRANZ, LAUREN · 2015 to 2019
$901k
Tailoring treatment targets for early autism intervention in AfricaR21MH120696 · NIMH · DUKE UNIVERSITY · PI FRANZ, LAUREN · 2019 to 2020
$362k
NIMH NIH HHS K01 MH104370NIMH NIH HHS R01 MH127573NIMH NIH HHS R21 MH120696
6 · The paper itself

Abstract

Objective: Tele-delivered interventions can benefit autistic children and families in low-resource settings, but the digital divide may worsen existing disparities. To address this, we adapted a Naturalistic Developmental Behavioural Intervention (NDBI)-based caregiver coaching program for tele-delivery to enhance fit for low-resource families in Cape Town, South Africa. This manuscript examines the contextual fit (acceptability, appropriateness, feasibility) and implementation facilitators/barriers of the adapted intervention. Methods: A mixed-method design was used to assess implementation outcomes in a pilot study of 16 participants (caregivers and practitioners), with quantitative (Acceptability of Intervention Measure, AIM; Intervention Appropriateness Measure, IAM; Feasibility of Intervention Measure, FIM) and qualitative data. Quantitative data were analysed using descriptive statistics and qualitative interview data using framework analysis. Results: Quantitative data showed high scores for acceptability, appropriateness and feasibility (AIM intervention materials = 4.5/5; AIM session structure = 4.4/5; IAM intervention materials = 4.6/5; IAM session structure = 4.5/5; FIM session structure = 4.4/5), supported by qualitative findings. Barriers included small text size on intervention materials and internet connectivity. Facilitators included minimal text in intervention materials, an accessible delivery platform (WhatsApp), collaborative caregiver-practitioner relationships, data and technical support, protected practitioner time, and school leadership support. Conclusion: This is one of the first studies in a LMIC to assess implementation of an asynchronous autism caregiver coaching program delivered entirely via a low-cost instant messaging platform (WhatsApp). Findings suggest the tele-delivered intervention fit well in this low-resource South African setting. Results are promising, and evaluating caregiver and child outcomes is a key next step.

Indexed as

acceptabilityappropriatenessautismbarriersdigital dividefacilitatorsfeasibilityLMICtelehealth

Identifiers

PMID42291767
PMCPMC13261048

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.