Evidence map›Paper›PMID 42288931›Full record

ArticleResearch involvement and engagement2026

Involving patient partners as appraisers of shared decision making: an explanatory sequential mixed-methods study.

Bettina Mølri Knudsen, Mette Byg Josefsen, Mona Muusmann Petersen, Poul Risom, Henriette Witte Nielsen, Frede Donskov, Stine Rauff Søndergaard, Karina Dahl Steffensen, Dawn Stacey, Lea Lund

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Article in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Bettina Mølri KnudsenCenter for Shared Decision Making, Lillebaelt Hospital - University Hospital of Southern Denmark, Beriderbakken 4, Vejle, DK-7100, Denmark. Bettina.Knudsen@rsyd.dk.ORCID https://orcid.org/0000-0002-6231-3374
Mette Byg JosefsenCenter for Shared Decision Making, Lillebaelt Hospital - University Hospital of Southern Denmark, Beriderbakken 4, Vejle, DK-7100, Denmark.
Mona Muusmann PetersenPatient Partner, Haderslev, Denmark.
Poul Risom, Patient Partner, Esbjerg, Denmark.
Henriette Witte NielsenDepartment of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, Odense, Denmark.
Frede DonskovDepartment of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, Odense, Denmark.
Stine Rauff SøndergaardDepartment of Oncology, Lillebaelt Hospital - University Hospital of Southern Denmark, Vejle, Denmark.
Karina Dahl SteffensenDepartment of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, Odense, Denmark.
Dawn StaceyDepartment of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, Odense, Denmark.
Lea LundCenter for Shared Decision Making, Lillebaelt Hospital - University Hospital of Southern Denmark, Beriderbakken 4, Vejle, DK-7100, Denmark.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatient and public involvement (PPI) is increasingly recognised as a valuable component of health research, yet patients are rarely included in data analysis within shared decision making (SDM) studies. We aimed to assess the feasibility and value of involving patient partner appraisers of SDM using the OPTION

methodsAn explanatory sequential mixed-methods design was used. Four patient partners and three researchers used the validated Danish version of OPTION

resultsThe four patient partners appraised 25-27 consultations each. Total OPTION

conclusionsInvolving patient partners as appraisers of SDM using OPTION

trial registrationEthical approval was obtained from the Research Ethics Committee at the University of Southern Denmark (approval ID 23/555) for the involvement of patient partners as co-researchers.

Indexed as

Oncology consultationsOPTION5Patient partnerPatient voicePPISDMShared decision making

Identifiers

PMID42288931
PMCPMC13263953

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.