Evidence map›Paper›PMID 42284370›Full record

ArticlePloS one2026

The Good Life with Dementia approach: A realist-informed qualitative study of a peer-tutored course, co-produced with and for people living with dementia.

Kate Gridley, Mark Wilberforce, Rachel Mann, Laura Tucker, Beth Casey, Chris Clarke, Sam Creavin, Irene Donaldson, Howard Gordon, Damian Murphy and 3 more

Abstract read
In one paragraph

Article in PloS one, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Kate GridleyOlder Adults' Social Care Research (OSCAR) Group, University of York, York, North Yorkshire, England.ORCID https://orcid.org/0000-0003-1488-4516
Mark WilberforceOlder Adults' Social Care Research (OSCAR) Group, University of York, York, North Yorkshire, England.ORCID https://orcid.org/0000-0001-6977-4483
Rachel MannOlder Adults' Social Care Research (OSCAR) Group, University of York, York, North Yorkshire, England.
Laura TuckerMental Health and Social Care Research Centre, School for Business and Society, University of York, York, North Yorkshire, England.
Beth CaseyMental Health and Social Care Research Centre, School for Business and Society, University of York, York, North Yorkshire, England.
Chris ClarkeTees, Esk and Wear Valleys NHS Foundation Trust, York, North Yorkshire, England.
Sam CreavinCentre for Academic Primary Care, Bristol Medical School, Bristol, England.
Irene DonaldsonStriving Towards a New Day (STAND), Fife, Scotland.
Howard GordonDeepness Dementia Media, Port of Ness, Isle of Lewis, Scotland.
Damian MurphyInnovations in Dementia CiC, Exeter, Devon, England.
Mark PearsonWolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, East Riding of Yorkshire, England.ORCID https://orcid.org/0000-0001-7628-7421
Mohammed Akhlak RaufMeri Yaadain CiC., Bradford, West Yorkshire, England.
Yvonne BirksOlder Adults' Social Care Research (OSCAR) Group, University of York, York, North Yorkshire, England.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

People with dementia often report a lack of post-diagnostic support, and much of the current dementia training available is for staff or carers, not for the person diagnosed. The Good Life with Dementia course was designed with and for people with a diagnosis of dementia and is co-delivered by peer-tutors living with dementia, supported by a trained facilitator. This study used realist-informed methods, underpinned by a co-productive ethos which values all sources of expertise equally, to better understand the core constructs underpinning the Good Life approach and how these operate to produce outcomes. The resultant, evidence-based programme theory suggests that - in a context characterised by shared experience, equality and positive expectations - three key mechanisms can trigger: sharing of experiences and resources; peer-led learning and responding; and the taking on of meaningful roles. Qualitative evidence indicates that these mechanisms are likely to lead to four interconnected outcomes: enjoyment; feeling valued (personhood); (re)building social confidence and connections; and positive reframing of life with dementia, meaning participants felt more prepared to face the challenges ahead. Not everyone diagnosed with dementia will want to take part in a peer-led course, but interventions like a Good Life with Dementia could be part of a suite of post-diagnostic options available to help people with dementia to live as well as possible. The next step will be to establish whether the approach can be manualised, delivered with different communities and evaluated in trial conditions. This will be assessed via an inclusive feasibility study already underway and due to conclude in August 2027.

Indexed as

DementiaPeer GroupCaregiversFemaleHumansMaleQualitative ResearchQuality of Life

Identifiers

PMID42284370
PMCPMC13262849

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.