Evidence map›Paper›PMID 42267898›Full record

ArticleJournal of palliative care2026

Caregiver Preferences for AI-Supported Telemedicine in Pediatric Palliative Care: A Discrete Choice Experiment.

Carlos Antonio Godoy Junior, Lucia Peñarrubia-San-Florencio, Silvia Ricart, Sergi Navarro Vilarrubí, Maria Rimblas Roure, Cristina Ruiz-Herguido, Arnau Valls-Esteve, Luis Pilli, Carin Uyl-de Groot, William Ken Redekop and 1 more

Abstract read
In one paragraph

Article in Journal of palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Carlos Antonio Godoy JuniorErasmus School of Health Policy and Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.ORCID 0009-0008-0871-459X
Lucia Peñarrubia-San-FlorencioPediatric Palliative Care and Complex Chronic Patient Service, Sant Joan de Déu Hospital, Esplugues de Llobregat, Barcelona, Spain.ORCID 0000-0002-2276-5050
Silvia RicartPediatric Palliative Care and Complex Chronic Patient Service, Sant Joan de Déu Hospital, Esplugues de Llobregat, Barcelona, Spain.ORCID 0000-0002-0651-8180
Sergi Navarro VilarrubíPediatric Palliative Care and Complex Chronic Patient Service, Sant Joan de Déu Hospital, Esplugues de Llobregat, Barcelona, Spain.ORCID 0000-0002-1009-8991
Maria Rimblas RourePediatric Palliative Care and Complex Chronic Patient Service, Sant Joan de Déu Hospital, Esplugues de Llobregat, Barcelona, Spain.
Cristina Ruiz-HerguidoResearch Institute Sant Joan de Déu, Esplugues de Llobregat, Barcelona, Spain.ORCID 0000-0002-5133-3564
Arnau Valls-EsteveResearch Institute Sant Joan de Déu, Esplugues de Llobregat, Barcelona, Spain.ORCID 0000-0002-1151-3042
Luis PilliErasmus School of Health Policy and Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.
Carin Uyl-de GrootErasmus School of Health Policy and Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.
William Ken RedekopErasmus School of Health Policy and Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.
Welmoed Kirsten van DeenErasmus School of Health Policy and Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.ORCID 0000-0002-4836-9849

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

BackgroundAsynchronous telemedicine may support home-based pediatric palliative care (PPC) by improving access to professional guidance and reducing caregiver uncertainty. Artificial intelligence (AI) may further enhance such services by supporting triage and workflow efficiency, yet evidence on how families prioritize specific features of AI-supported telemedicine remains limited.AimTo quantify primary caregivers' (PCGs) preferences for key characteristics of an asynchronous, AI-supported telemedicine program for children receiving home-based PPC.MethodsA discrete choice experiment (DCE) was conducted among PCGs of children enrolled in a tertiary PPC program. Participants completed 12 choice tasks involving trade-offs between telemedicine attributes: type of service (doctor- and nurse-supported telemedicine vs AI-supported telemedicine), response time to receive a reply from a clinician or nurse (6-48 h), and reduction in hospital visits. Preferences were analyzed using a mixed multinomial logit model.ResultsThirty-one PCGs completed the survey. Participation in a telemedicine service was preferred to the opt-out alternative. Response time to clinician or nurse feedback was the dominant driver of preferences, accounting for approximately 60% of decision-making. PCGs showed a modest but statistically significant preference for doctor- and nurse-supported telemedicine. Reduction in hospital visits was not a consistent driver of choices. Predicted uptake was high but declined markedly with longer response times.ConclusionPCGs value telemedicine in PPC primarily for timely access to trusted clinicians rather than efficiency alone. AI-supported telemedicine appears more acceptable when it augments clinicians and shortens the time to human response. Responsiveness and continuity of clinician relationships should inform the design of future digital services in PPC.

Indexed as

Artificial IntelligenceCaregiversPalliative CareTelemedicineAdultChildChild, PreschoolChoice BehaviorFemaleHome Care ServicesHumansInfantMaleSurveys and Questionnairesartificial intelligencecaregivershome care servicespalliative carepatient preferencepediatricstelemedicine

Identifiers

PMID42267898
PMCPMC13550745

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.