ArticleFrontiers in neurology
Current status of Internet medical health service usage behavior and demand of myasthenia gravis patients: a cross-sectional study.
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Abstract
Objective: Internet-based medical and health services can help patients better manage chronic conditions. This study aimed to investigate the current usage, influencing factors, and needs of Internet medical health services among myasthenia gravis (MG) patients. Methods: Using a convenience sampling approach, 160 patients with myasthenia gravis who attended the First Affiliated Hospital of Guangzhou University of Chinese Medicine between February and June 2023 were recruited. Participants' baseline characteristics, current status of medical health service use, and demand for Internet medical health service and Internet disease health management services were assessed. Descriptive statistics, chi-squared tests, Fisher's exact tests, and binary logistic regression were used to examine service utilization and the factors influencing it. Results: A total of 165 questionnaires were distributed, and 160 valid questionnaires were included. Among the 160 MG patients, 105 (65.6%) were women, and 45.0% were aged ≤ 39 years. The majority of MG patients had used Internet medical health services, but their frequency of use was low. Age and privacy concerns were identified as risk factors, whereas educational level and operational convenience (ease of use) of Internet medical health service software were protective factors. MG patients reported a high demand for online appointment booking (87.5%), knowledge inquiry (78.8%), and online consultation (73.1%). The top three Internet disease management services were medication management (80.0%), symptom management (77.5%), and lifestyle management (73.1%). Conclusion: MG patients demonstrated a high willingness to use Internet-based medical and health services. However, owing to operational difficulties, privacy concerns, insufficient trust, and other barriers, MG patients have not yet fully utilized these services. Internet medical health services should prioritize highly expected functions and provide information-rich content that is easy to use.
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